Did I hear “dry eyes”? OMG. I’ve always had dry eyes, but they became PAINFULLY dry a couple of years ago. The same thing happened to my son, and frankly, I hear about it from almost everyone with EDS. If it comes with a dry mouth, we keep an eye out (ha) for Sjogren’s Syndrome (an autoimmune condition we are prone to).
Histamine and mast cell disorders certainly makes this worse, and Pataday or Zaditor is a huge help. I, too, don’t close my eyes all of the way at night, at always recommended to my patients that they turn off their ceiling fans at night, if that happens (I use a “chillow” if I’m hot at night.) I also use and recommend punctal plugs, Lacriserts helped me for a while (but they are pricey), Restasis, and topical steroid drops when it is very bad. I am on additional treatments now (as you all know, I’m working on bringing you the trials). Most of my symptoms of dysautonomia are GONE, no cog fog, fatigue, G.I. issues, etc, but I still get dry eyes as the day grows long. It’s better, but still there. Only time will tell if that goes away, too. I can hardly WAIT to get you all in on these treatments. Hang in, OK? 🙂 Diana