• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst. › Reply To: Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst.

September 24, 2012 at 10:00 pm #2956
Dr. Diana
Keymaster

Did I hear “dry eyes”? OMG. I’ve always had dry eyes, but they became PAINFULLY dry a couple of years ago. The same thing happened to my son, and frankly, I hear about it from almost everyone with EDS. If it comes with a dry mouth, we keep an eye out (ha) for Sjogren’s Syndrome (an autoimmune condition we are prone to).
Histamine and mast cell disorders certainly makes this worse, and Pataday or Zaditor is a huge help. I, too, don’t close my eyes all of the way at night, at always recommended to my patients that they turn off their ceiling fans at night, if that happens (I use a “chillow” if I’m hot at night.) I also use and recommend punctal plugs, Lacriserts helped me for a while (but they are pricey), Restasis, and topical steroid drops when it is very bad. I am on additional treatments now (as you all know, I’m working on bringing you the trials). Most of my symptoms of dysautonomia are GONE, no cog fog, fatigue, G.I. issues, etc, but I still get dry eyes as the day grows long. It’s better, but still there. Only time will tell if that goes away, too. I can hardly WAIT to get you all in on these treatments. Hang in, OK? 🙂 Diana

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020