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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: 11 y.o. with Dx of Pseudo Tumor Cerebri – Help!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › 11 y.o. with Dx of Pseudo Tumor Cerebri – Help! › Reply To: 11 y.o. with Dx of Pseudo Tumor Cerebri – Help!

August 25, 2015 at 8:02 pm #5644
Barbara
Participant

Ok, I understand – but keep a check that she holds her head up whenever possible, supported with cushions if necessary (watch if she slumps down though because the cushions will push the back of her head forwards and this must be avoided at all costs). Constant correction will help train her muscles, so eventually she won’t need to think about it and hopefully delay the onset of further symptoms and disk problems. Sorry, you probably know all this already but I’m writing it for those reading this post who are just starting down this ‘journey’ and probably don’t know.

Regarding the Diamox, if I remember rightly, Dr B (then from TCI) recommended I take 250mg x 3 times a day but, I have to admit, I found 125mg x 3 times a day, a better dose for me, the higher dose was too much. We all however, as you know, react differently to drugs, many of us not requiring as much as the recommended dose, so you just have to ‘trial and error’ it until you find the best results.
Regards
Barbara
(UK)

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