Ask your doctor about a trial with Atarax (hydroxyzine). Research Dr. Theoharides research on mast cells at mastcellmasterdotcom. Atarax crosses the BBB so it effects mast cells in the brain. My attention, memory, word finding, anxiety, etc has improved dramatically on Atarax. It made me really sleepy at first so I started just taking it at night and then tiny pieces of a pill in the morning and slowly worked up to tolerate 10 mg doses during the day. Atarax and NasalCrom have helped me the most. Recently I’ve gone from being gluten free to also removing corn, potatoes, and rice and my resting heart rate has dropped and my BP’s have gone up a bit to be within the normal range (I usually have low bp) so tweaking diet might be worth a try too. I really like Maria Emmerich’s blog and books.
You could have her try Skins Travel and Recovery Tights… they are used by athlete’s and offer compression from foot to waist. They look sporty and last a lot longer than compression stockings! Shop around, I found them cheaper somewhere else… but you can read about them here:
My son (14) who has POTS and I both swear by SmartWater. We like it better than Gatorade. I wrote a note to the school last year so his teachers would let him take it to class. Eating salty snacks and drinking a lot of SmartWater keeps my son’s POTS under control but he has a mild case. He also takes NasalCrom which has stopped his chronic sinusitis and he really likes Claritin reditabs which is great because I don’t have to remind him to take it. I’m hoping his doctor will have him do a trial with Atarax since it has helped me so much. Best of luck to you finding what works best for your daughter. We have to be detectives!