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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: CBS gene mutations being investigated in Ehlers-Danlos.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › CBS gene mutations being investigated in Ehlers-Danlos. › Reply To: CBS gene mutations being investigated in Ehlers-Danlos.

December 15, 2012 at 5:29 am #3214
jillMEnz
Participant

Sweet feather : Is diamox contra indicated if one has sulpha allery?

Weirdly I have sulpher antibiotic allery too and Johns Hopkins pediatricain said I had EDS, but NZ geneticist said I didn’t tick enough boxes but then he didn’t know about the POTs in EDS either, nor the sleep apnea in Marfans I’m guessing. My Al (whi I suspect has marfans , is seeing same geneticist so I hunted the net to find out what tests they *should * do, one was a sleep study. Apparently a lot of Marfans have apnea – not snoring kind though.

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