NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › A Relationship Between Brain Organization and Ehler-Danlos Syndrome › Reply To: A Relationship Between Brain Organization and Ehler-Danlos Syndrome
So interesting. I’m not certain about making a blanket statement but the premise is interesting. Out of 4 children pretty sure we’re 4 for 4- only 1 has been diagnosed, the others are adults and are not sure they want to launch themselves into the diagnosis. Odd since we’re Hypermobile with Classic aspects- no one heard of connective tissue disorders when I was a little girl. SO many kooky things have been explained, SO many!
I think we’re similar to descriptions in the post, a lot identical, would have to go through one by one. I’m answering the original post mostly to see what members who know much more than me have to say. We’ve only been diagnosed for 2 years- extremely new. WHAT a relief. Gosh. All these seemingly disparate ‘things’ for all these years now make sense.