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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: New here. Hope this is the right forum….

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › New here. Hope this is the right forum…. › Reply To: New here. Hope this is the right forum….

December 15, 2014 at 1:14 pm #5182
Dr. Diana
Keymaster

Hi Kir, Welcome to the forum! You are certainly in the right place. Although I don’t know of a doctor to recommend to you, I had a couple of thoughts. One, I have experienced every single symptom you describe, as have many others. You are NOT alone. In The Driscoll Theory book, I describe what doctors already understand about high intracranial pressure — we don’t always exhibit papilledema. Knowing this, a doctor can either treat you (with Diamox) as a “idiopathic intracranial hypertension without papilledema” patient based on symptoms, or perform an LP to prove that your pressure is high prior to treatment. I’m trying to raise awareness about the dangers of LP’s in those of us with connective tissue disorders (they often end up leaking chronically). References and explanation is in the book — I hope it helps you get the treatment you need with a minimum of invasive procedures. 😉 Please keep us posted!

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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