Hi Kir, Welcome to the forum! You are certainly in the right place. Although I don’t know of a doctor to recommend to you, I had a couple of thoughts. One, I have experienced every single symptom you describe, as have many others. You are NOT alone. In The Driscoll Theory book, I describe what doctors already understand about high intracranial pressure — we don’t always exhibit papilledema. Knowing this, a doctor can either treat you (with Diamox) as a “idiopathic intracranial hypertension without papilledema” patient based on symptoms, or perform an LP to prove that your pressure is high prior to treatment. I’m trying to raise awareness about the dangers of LP’s in those of us with connective tissue disorders (they often end up leaking chronically). References and explanation is in the book — I hope it helps you get the treatment you need with a minimum of invasive procedures. 😉 Please keep us posted!