It’s a chronic illness, which means there’s no cure, but that doesn’t mean her quality of life can’t be improved — it certainly can!
Buy the Dr.Tinkle book on EDS Hypermobility for more information.
Pain is very individual – but TENS machines, heat packs, anti-inflammatory foods, rest & relaxation, meditation for chronic pain can all be used in conjunction with stronger medication.
Don’t bother talking to psychiatrists about Ehlers Danlos. Use them for mental / emotional support with anxiety, depression, chronic pain. And find a doctor who specialises in connective tissue diseases in your area – they can refer you to support groups, and other professionals to add to her “team”
Oh also also — BEST. BOYFRIEND. EVER.
Sending you my best