• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

18 month old w/retroflexed odontoid…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › 18 month old w/retroflexed odontoid…

  • This topic is empty.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • April 16, 2015 at 1:50 pm #822
    JenniferGoss
    Participant

    Hello,

    I am here to try and find some more information or perhaps ease my mind. My daughter is 18 months old and has a severe swallowing disorder. Because of this, we have been through the ringer with different tests. She had an MRI to rule out Chiari malformation. We thought maybe it was Chiari because she is very clumsy, she aspirates all consistencies of liquids, her left leg is longer than her right and she only swings her left arm when running/walking, she loves to make herself dizzy and is always craving deep pressure around her ears and her head. Cognitively she has developed well. Her MRI was read and came back as “normal”, meaning no Chiarai was found, but I did read in the report that the “odontoid is noted to be retroflexed”. From the simple google searches I have done, it seems that this is only associated with a Chiari malformation. Can any one help me better understand this? We don’t have an appt with a neurologist until the middle of May.

    Thanks in advance!

  • Author
    Posts
Viewing 1 post (of 1 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020