May 16, 2017 at 7:38 pm #1116
Anyone else get this??? Usually the day or 2 before my period starts I start getting adrenaline surges. This is how I know it’s coming. It’s like my body is trying to prepare me for the start, and possibly lessen the impending inflammation.May 17, 2017 at 3:51 pm #6165bombsh3llParticipant
Do you feel better after your period? I have skipped mine using continuous birth control for over two years since I first started with POTS, in the hope this would improve my blood volume. I have recently been researching blood viscosity and flow to the brain and have decided to start menstruating again to see if the reduced haematocrit will help perfuse my oxygen starved brain! I will be having my first period in years in the next 2 weeks and hope I don’t experience worsening adrenergic symptoms, however as I medicate my cycle my body will have no way of knowing in advance that it won’t be getting a pill that week!
Have you thought about suppressing your cycle with birth control if monthly symptoms are problematic?
B xxxMay 17, 2017 at 6:04 pm #6166
I don’t take any medication just as a personal preference. I notice this happens when I’m not 100 percent. It’s sort of a diagnostic tool that allows me to gauge where I’m at. That’s interesting what you mention about blood flow to the brain. I’ve had such serious memory and cognitive issue which is particularly frustrating to me, as I love to read and learn new things. This is all very new to me. I just realized last week that this is what I have been suffering from, so it’s a matter of trial and error now.May 18, 2017 at 10:30 am #6167bombsh3llParticipant
Do you take any supplements Valerie? I just started taking high dose fish oil capsules as well in the hope of reducing viscosity and improving deformability of red blood cells, to help with the flow through constricted blood vessels in the brain. Old red blood cells are less flexible than young ones, so I am hoping to start getting rid of some old red blood cells through menstrual loss which will then hopefully stimulate production of new ones – like a natural form of therapeutic venesection. It really is all guesswork and instinct though, I truly thought I was helping myself conserve blood volume by avoiding my cycle. Everything I drink I pee right out again, which is a real problem with the hyperadrenergic state. If only we could find away to break the vicious cycle!May 18, 2017 at 3:14 pm #6168
Ack I know what you mean by peeing out everything! I do take supplements. Salt obviously, magnesium, systemic enzymes, licorice root, ephedrine, and some others as needed. I actually was on fish oil for years but through trial and error found it was causing me to bruise a lot more often which meant it was making my blood even thinner, thus reducing the pressure and volume so I stopped. Now that I know what’s up I’m mostly now trying to tackle this through cardiovascular conditioning, and and addressing the overactive immune system/mast cell disorder.
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