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Dear Dr Diana, I really would be so grateful for your help. it was like a miracle finding a doctor who experiences similar symptoms to me. I hope you don’t mind if I share some of my symptoms.
Age 6 Pneumonia in hospital. Age 6 to 12 Vivid dreams, sleep paralysis, have now. Asthma, but no asthma attacks. Age 14 to 16 Frequently ill, missing a year of schooling. Chronic fatigue, pleurisy – hospital for 1 week loosing over 14 pounds in weight. Depression.
Age 22, 2 miscarriages. 2nd miscarriage terrible pain and stayed in hospital for few days. First baby, difficult back to back birth. Lost a lot of blood and stitched following birth for 5 ongoing hours to repair tear.
Migraines. Hard to bare. Experienced constant nausea and pain. Last 5 days to a week, stop for a week and start again. – Pain in neck with weakness/flu like feeling in shoulders. Prescribed propranolol which has helped. Now vomit with migraines, so nausea and weakness more severe.
Pains in vagina on and off with clicking joint.
Pregnant with fourth child, had Hyperemisis, extremely ill. In hospital for a number of days on drip and other medicines to help. With it had constant migraines, flu like feeling with terrible weakness mostly in shoulders, rest of body weak too. Terrible nausea and excessive saliva. Too ill to get out of bed, wash, brush teeth etc. Ill in each pregnancy for first trimester, worse each following pregnancy. Ill for weeks following birth of each of my children with terrible weakness, migraines and depression.
30 years old. Chest pain. ECG came back irregular, went to specialist, didn’t check me, said I was too young to have heart problems. I get frequent muscle pains in chest. I think they might be inflamed ribs as my mom gets that to.
The past 5 + years had uncontrollable sleepiness when driving more than 15 minutes. Dangerous, so saw doctor and explained situation. Went for sleep study which showed constant waking episodes through out sleep, one of the symptoms of Narcolepsy. Always been a light sleeper. Specialist believes I have a form of Narcolepsy and prescribed Modafinail. I also had terrible weakness, so was prescribed Venlaflaxine which helps. – Weakness would mean I had to lay down feeling flu like symptoms. Uncontrollable sleepiness also happened when I wasn’t driving.
Ongoing symptoms – Wrestless leg syndrome, occurs throughout my body. Body jerks when trying to go to sleep and relaxing in day. My body struggles to regulate its temperature. Excessive sweating on face, head and body, even in cold weather. Daily neck pain and headaches for 10 + years and makes me feel ill. Shooting pains down arms, especially right arm. Clicking aching jaw.
Tongue tingles, also around mouth and at side of eyes. Face has had tremor. In very cold weather I get extreme pain in chest and struggle with breathing. Hands tremor at times. Recently some veins bulging, causing bruised bumps. Right wrist very weak, painful when driving and doing jobs. Feels broken at times, even though isn’t. Have swollen fingers when waking in night and morning. Fingers would also be bent to the side at times when I would wake. Saw Physiotherapist about wrist and she said my right hand and wrist are a lot weaker than my left and thinks I have Hypermobility. In bed my right wrist can suddenly seem to pop out of place for no reason. Burning sensations in legs. Pins and needles in fingers and toes. Weakness in right knee. Knee gives way, seems to click out of place. Exercise and pain makes knee worse. My left knee has started to feel similar. Doctor could see my knee move more than it should and sent me for MRI, came back normal. Vaginal Prolapse and Rectocele, causes many symptoms and need operation very soon. Symptoms getting worse, so now I can not put off surgery. Afraid of surgery as I get very weak and don’t know how it will effect me. – Symptoms are trapped urine, trapped bowel movements, prolapse protruding outside vagina. Have to push on bulge to have bowel movement. Soreness in vagina. Pain with intercourse and after. Trapped wind, constant bloating, nausea and pain. Having to stand to wee. Not able to empty bladder or bowel fully, having to go back to toilet after I have just been. Diarreah which gets blocked and causes unbearable pain. Diarreah is worse symptom prolapse, thankfully doesn’t happen too often.
Slight tinnitus. Petechial rashes different places on my body. Feel weak/low in sugar daily, need to eat something to feel better again, normally sugary. – Tested for diabetes, came back normal. Always had low blood pressure, two recent blood pressure tests came back high. Advice would be really appreciated. My children show a few similar symptoms. Not sure doctors will take me seriously. I would like to call you for a telephone appointment, but I might have looked in the wrong place on your sight, help with that would really be appreciated. Thank you so much.
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