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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Allergic Reaction to Beta Blockers

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Allergic Reaction to Beta Blockers

  • This topic has 1 reply, 1 voice, and was last updated 8 years, 7 months ago by SunshineLollipops.
Viewing 2 posts - 1 through 2 (of 2 total)
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  • August 8, 2014 at 6:52 pm #721
    SunshineLollipops
    Participant

    Hello Everyone, first time writing here and I would like to thank Dr. Diana for making this forum and videos. I was prescribed atenolol .25 mg 3 times a day. On my third dose I broke out in hives and had a wheezy cough and sore throat. I gave it about 2 weeks to clear out of my system and my cardiologist then prescribed Zebata in 5mg. I only took half and 24 hours later I developed a rash and again problems with my throat. I had looked into mast cell and had been taking the zyrtec/zantac combonation when this happened. I called my doctor back and the nurse said that he didn’t want to try any more medicine and would not schedule an appointment! She then told me to drink a lot of water and no caffeine, which I have been doing for months now. I actually started crying on the phone because I feel like I was given up on because I could not take the medicine. The doctor actually said there was no way it was the beta blocker but I assured him that I had not changed anything in my diet. I feel so angry and upset and desperate to feel normal. My tests results showed that my heart beats incredibly fast and as the doctor said, “you have more adrenaline than 3 people”. I am going to continue the h1 h2 combo. I would like to know if any of you who are like me have found any help with the drug clonidine? I also have intense pressure inside my head that feels like I am wearing a head band on the inside but trying to tell my gp that I may need Diamox would be like asking the Pope to come have supper. I am only 34 and I have children that are depending on me but at times my heart pounds so much just to speak let alone get up and do something. I don’t know where else to turn.

    August 25, 2014 at 12:28 pm #5041
    SunshineLollipops
    Participant

    Wanted to do an update on my meds. I brought Dr. Blair Grubbs analysis on Hyper Adregenergic Pots to my PD. I am taking 30mg of Cymbalta and only on day 2, I feel a difference in my energy levels. Also, my pulse is somewhat lower, although I think it is too early to give all credibility to the Cymbalta. I was also prescribed 0.01mg of Clonidine to take at night because my adrenaline really spikes at bedtime. I only took half the first 2 nights because I wanted to ease into it slowly. I fell asleep fast but woke up a couple of times the first night. The second night I felt like my heart went up a little. I talked to my pharmacist and she seemed to think it was the Cymbalta and not the Clonodine and to take the full amount tonight, which I will. My blood pressure is good and my pulse seems a tad lower today even while doing some housework, yes!, I can clean up the house without seeing stars or having an attack that puts me to bed. I am also following the same diet, high fat/high protein/low carb as well. I hope this can help anyone suffering through the same ordeal. I wish you all the very best luck. Keep fighting for yourself because you are worth it. 🙂

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