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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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angel wings pain in back of head and neck

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › angel wings pain in back of head and neck

  • This topic has 2 replies, 2 voices, and was last updated 10 years, 1 month ago by Barbara.
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  • January 19, 2013 at 2:28 pm #395
    Lauren
    Participant

    I am new to this forum and not sure if I am writing this in the correct place. I am trying to comment on the thread about waking up with head and neck pain. I read that and was like WOW! i had never heard of this issue of intracranial pressure but geez, waking up in the morning is a nightmare of pain and the head and neck thing is the worst. I am going to run, (very carefully) to the store and get a cervical collar TODAY!

    thank you so very much Dr. Diane and all who share their struggles.
    Lauren

    January 27, 2013 at 12:50 pm #3375
    Anne
    Participant

    I assume this is a continuation of the previous thread that was closed.
    Lots of great discussion as you said.
    I just tried something new. Not sure why I tried it but it helped a lot.
    I laid down with my head lower than my hips. I have a massage table and lowered one end and put my head at the low end. When I get up after about a minute, my back pain goes away!
    That seems exciting but scarey to me at the same time. I seemed to be in a better mood too.
    Not sure if it’s advisable but right now if it feels good, I do it, several times a day.

    February 4, 2013 at 8:48 pm #3390
    Barbara
    Participant

    There is a therapy recommended sometimes, called inversion therapy, which technically does what you’ve described, using a piece of equipment. I don’t know how popular this is, or whether anyone on this site has tried it but I did wake up once with my head hanging off over the edge of the bed and I felt good too – though I couldn’t repeat this process, so obviously ‘angle and position’ must play a part in it.

    I can see how it would work (on those who don’t have CCI or compromised circulation), as gravity does play it’s part in our condition. I think it could temporarily partially ‘unbung’ any cerebellar tonsil that is blocking ‘cerebrospinal fluid (CSF) flow’ between the head and the spine, which contributes to the back of head (occipital) headache we have, plus the neckache and probably shoulder ache. This would allow freedom of flow of the CSF, which would temporarily lesson any intracranial pressure, thus probably improving blood perfusion to the brain area.

    For those with Craniocervical Instability though, you could risk further stretching the brainstem, so for that reason (plus the circulatory issues) I wouldn’t try it.
    Regards
    Barbara
    (UK)

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