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My kids with EDS had big and nearly bald heads as babies. I know big heads are common… anyone else’s babies with EDS nearly bald as infants/toddlers?
Not in my case or my daughter’s. Both born with a full head of hair.
It must be from my Mom… I remember she told me she had so little hair as a kid her Mom shaved her head! I’m not sure that was necessary because most of my kids were baldies but ended up with really thick hair. The one who had the thickest as a baby has the thinnest now. Go figure! 😉
My son was bald for the longest time. Even now his hair is VERY thin! Every other child in our family has had lots of hair.
My HEDS daughter was born with a full head of hair, but my niece was bald until after she was 3. She was seriously like completely bald. My niece is 9 and I have asked her to the beighton scale for me, and she is 8/9, just can’t touch palms to the floor.
All 3 of my children were born with a full head of hair, both my bendy daughters and my marfan-like son.
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