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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
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On top of my dysautonomia/POTS and orthostatic hypotension, touretts and PCOS… I have lots of muscle achs and pains, my joints (knees,fingers,elbows,hips) pop out all the time also… I have been having back problems for most of my teenage years but it is progressivly getting worse. Wondering if any body else has this problem. When I lay flat on my back or stomach my back will instintly “lock up” on me and i have this horrible pain shoot through my lower back. The pain is so unbearable that sometimes it makes me cry! ugh. Im wondering if anybody might know what causes this and if anybody else has this. By the way to tell you how horrible this pain is i cant move a muscle for 2-3 hours after this happens and im sore for 2-3 days after. So if anybody can help or relate please please please respond!
Sorry to hear that you are going through this. I have never had my back ‘lock up’, but my ribs often subluxate and sometimes dislocate. This causes unbearable pain. I have found that using a spring / coil free mattress has helped a little. Also, I like to use ice packs and Epsom salt baths.
Have you been able to identify what makes it better or worse?
HI BO728… Thanks for responding… I used the words “lock up” cuz i didnt know how to describe it. But im thinking its either and nerve thing or im subluxing or dislocating someting in my back. It only happens when i streach out my back,like laying on my stomach or twisting my body to fast or far. And there is nothing i can do to make it better:( just have to ride it out. Usually getting out of the position helps a little but not much… Im guessing its due to my EDS but im not sure. Just got diagnosed.
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