- This topic has 3 replies, 2 voices, and was last updated 6 years ago by .
- You must be logged in to reply to this topic.
Is there any way or information that I can take to my doctors explaining how people with EDS and MCAD and POTS and all the other things we deal with have blood levels that even though they may show in the “normal” range of tests need to be considered not so “normal”? Does this make sense to you what I am asking? Thanks!
Hi, just found a theory I put forwards a few years ago, at:-
It may make them look further at ‘borderline’ results, you never know!
Also get them to check you for
signs of dehydration
signs of low blood volume
signs of sticky blood
Vitamin D levels
Vitamin B levels (deficiency can cause excess CSF issues)
Just a thought.
Thanks so much Barbara, I will check it out and print it out and take it with me for my appointments coming up.
I will also take them the list to check of the things you suggested.
Wow…. Just with a quick read of the above and below posts answered so other questions that I have. I can’t wait to go through and read the whole thread!
Thanks again, and the way you explained the blood volume makes complete sense to me and I’m not even good with math. lol
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross