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I’m pretty sure that’s what I’ve got, though I read recently that it gets more noticeable when you’re having a painful flare-up.
I’ve also got astigmatism in the one eye that’s always red (which does go down a bit with my daily use of antihistamine Visine), in addition to a weird yellowish lumpy spot that seems to always be there.
Anyone else?
The first image is with an HDR effect (I don’t always have such prominent veins under my eyes, lol) the second is plain view:
image hosting sitesHi,
I haven’t noticed the blue sclera in myself but I’ve heard it mentioned before, as a ‘sign’ (something objective that can be seen by the clinician) in this condition, probably by Dr Diana.I used to get the raised yellowish pockets above the white of my eye, whatever they are, though I haven’t noticed one for a while.
I get that prominence of blood vessels through the white of my eye, like you’ve got in the picture, usually on a ‘bad day’ this is also mentioned by Dr Diana as one of the ‘signs’.
Regards
Barbara
(UK)Ahh, gotcha, thanks 🙂 Yeah it’s not always the prettiest of signs, but nonetheless, good for diagnosis I suppose!
Hi Jessica, LOVE the avatar!!! That is one of the best photos of blue sclera I have ever seen! Good job! 😉 Usually, doctors like to use a penlight in a darkened room to see it, and will often compare to others in the room, to get some confidence. You? We can see you coming! 😉 I am SO GLAD you captured your yellow spot! Again, best pic I have seen of this! Usually, these spots are pinguecula, but ours seem to come and go, and pinguecula do NOT. I don’t believe this is in the literature at all, but needs to be. When it happened to me, I thought, HECK, I’m an over-achieving eye doc, and I’ve NEVER seen this before!! Very frustrating. I tried EVERYTHING on it to no avail. Then one day, it was gone. It came back briefly a couple of years later, then gone again. If I was a betting gal, I’d betcha we’d find some mast cell degranulations in there, but that is nothing but pure speculation. Be sure to watch for changes to be sure it doesn’t sneak into a sarcoma (your eye doc will know). Thanks for this! 🙂
Yes, they are excellent photo’s aren’t they. I’m trying to remember what the perfusion of blood vessels through the eye-whites is called, I know I’ve come across it, as a ‘sign’.
Thanks for telling us what the yellow lumps are called. I’ve just done a google image search and found a few that looked a little more like mine, which occured on the whites of my eyes between my nose and my iris. Mine seemed more raised and more jelly like than that shown above in the photo.
It said it can be associated with dry eyes, which I definitely have, do you ? One of the explanations I found is “A pinguecula is caused by the degeneration of the conjuctiva’s collagen fibres.” – oh fancy that, blooming collagen causing trouble again! I wonder if increasing Vitamin C intake will help ?
The good news is that even though I had them in both eyes, they’ve gone now.
Regards
Barbara
(UK)It said it can be associated with dry eyes, which I definitely have, do you ? One of the explanations I found is “A pinguecula is caused by the degeneration of the conjuctiva’s collagen fibres.” – oh fancy that, blooming collagen causing trouble again! I wonder if increasing Vitamin C intake will help ?
The good news is that even though I had them in both eyes, they’ve gone now.
Regards
Barbara
(UK)Hi Barb, That’s a bit YES on the dry eyes!!! I HAD to mention to you that pinguecula do NOT come and go. Our lumps are NOT pinguecula, hence my frustration with mine, when I couldn’t figure out what they HECK it was!!! One thing it’s not? Pinguecula. Back to the drawing board! 🙂
I, too, have ‘dry eye’. Also, darkened circles (which are now worse than ever – and, no, it’s not iron deficiency). I have astygmatism. Bloodshot eyes too. I don’t know about the other stuff and not really inclined to become educated about it at the moment. Oh, I do have a significant ‘pocket’/’bubble’ aka swollen under eye patch that chronically exists below my left eye. So swollen that I can actually see it in front of myself (in a lower peripheral type manner)without aid of a mirror. Stabbing pains in eyes too – dry eye?
Oh, I do have a significant ‘pocket’/’bubble’ aka swollen under eye patch that chronically exists below my left eye. So swollen that I can actually see it in front of myself (in a lower peripheral type manner)without aid of a mirror. Stabbing pains in eyes too – dry eye?
Boy, it’s really hard to say without looking, but if the bubble is clear, it may be a harmless (and unrelated) lymphangectasia. That is an annoying, but harmless, collecting of lymph fluid. I have tried everything I know to drain those, and to try to keep them from recurring. They have always come back. Ugh. But as far as “things to worry about”, that is ONE thing you can pretty safely put in the “it’s OK” category. Yea!! One thing in that category! 😉 Hang in, my friend. ;)Diana
Thanks! I’ve often wondered about my yellow spots, they just seem so.. odd.. I have them on both eyes, and while I’m not really sure if they come and go, I’ve noticed they’re always in the same exact spot. Another funny bit I’ve noticed recently, when I’m jaundiced (as I am now, with some crazy gallbladder issues..) you can’t even see it in my eyes due to the blue sclera, unless I look to the side and then wow! …my whites definitely show it.. Strange..
Wow. I have gray/blue sclera too. Plus dry eyes and the yellow spots. I thought the yellow spots were due to cholesterol levels being high. My levels are high. My two girls have the blue sclera too.
Hi everyone,
I was lucky enough to find Dr. Diana’s videos online and feel SO fortunate to have found this forum. I have been very ill since June 3rd with so many body systems affected, the most debilitating has been peripheral neuropathy, walking difficulties including a foot drop, and constant nausea with light-headedness. I have fainted twice and have somehow lost 10 lbs after spending a month on the couch. I have been through tons of tests at Kaiser, but have had very little luck getting a diagnosis. I have gotten very good at waiting, staying strong, and advocating for myself despite the dismissive attitudes of my doctors.
I clicked on this link because I was curious what blue sclerae was. I was shocked to see the photos, this is exactly what I woke up with the other day. I sent images to my doctor, in the event he thought they were relevant to my symptoms. He replied saying he would ask an older doctor he works with, but that was a week ago and still no reply.
So my question is, what conditions is blue sclerae associated with and is it a clue toward diagnosis?
My photos are not attaching because they are too big. I will try to compress and upload them separately. Thank you SO much for caring enough to read this. Any feedback is GREATLY appreciated!
Hi everyone,
I was lucky enough to find Dr. Diana’s videos online and feel SO fortunate to have found this forum. I have been very ill since June 3rd with so many body systems affected, the most debilitating has been peripheral neuropathy, walking difficulties including a foot drop, and constant nausea with light-headedness. I have fainted twice and have somehow lost 10 lbs after spending a month on the couch. I have been through tons of tests at Kaiser, but have had very little luck getting a diagnosis. I have gotten very good at waiting, staying strong, and advocating for myself despite the dismissive attitudes of my doctors.
I clicked on this link because I was curious what blue sclerae was. I was shocked to see the photos, this is exactly what I woke up with the other day. I sent images to my doctor, in the event he thought they were relevant to my symptoms. He replied saying he would ask an older doctor he works with, but that was a week ago and still no reply.
So my question is, what conditions is blue sclerae associated with and is it a clue toward diagnosis?
My photos are not attaching because they are too big. I will try to compress and upload them separately. Thank you SO much for caring enough to read this. Any feedback is GREATLY appreciated!
Sorry I did not see your post. I have Ehlers-Danlos Syndrome. The Blue sclera are seen in EDS, connective tissue diseases, osteogenesis imperfecta, AIDS, Marfans, Bloch-Sulzberger syndrome, Foelling syndrome, some dwarfisms, Turner syndrome, Werner Syndrome, and a few others. It is most common in diseases of the connective tissue. My guess is you have EDS.
Shonda
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