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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Blue Sclerae, anyone?

NEW STUDY! Parasym Plusโ„ข for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Blue Sclerae, anyone?

  • This topic has 12 replies, 6 voices, and was last updated 8 years, 10 months ago by Lab-Scientist-Lady.
Viewing 13 posts - 1 through 13 (of 13 total)
  • Author
    Posts
  • January 14, 2013 at 10:58 pm #392
    JessicaLeigh
    Participant

    I’m pretty sure that’s what I’ve got, though I read recently that it gets more noticeable when you’re having a painful flare-up.

    I’ve also got astigmatism in the one eye that’s always red (which does go down a bit with my daily use of antihistamine Visine), in addition to a weird yellowish lumpy spot that seems to always be there.

    Anyone else?

    The first image is with an HDR effect (I don’t always have such prominent veins under my eyes, lol) the second is plain view:

    image hosting sites


    image upload

    January 15, 2013 at 10:28 pm #3349
    Barbara
    Participant

    Hi,
    I haven’t noticed the blue sclera in myself but I’ve heard it mentioned before, as a ‘sign’ (something objective that can be seen by the clinician) in this condition, probably by Dr Diana.

    I used to get the raised yellowish pockets above the white of my eye, whatever they are, though I haven’t noticed one for a while.

    I get that prominence of blood vessels through the white of my eye, like you’ve got in the picture, usually on a ‘bad day’ this is also mentioned by Dr Diana as one of the ‘signs’.
    Regards
    Barbara
    (UK)

    January 17, 2013 at 1:27 am #3352
    JessicaLeigh
    Participant

    Ahh, gotcha, thanks ๐Ÿ™‚ Yeah it’s not always the prettiest of signs, but nonetheless, good for diagnosis I suppose!

    January 17, 2013 at 10:12 pm #3358
    Dr. Diana
    Keymaster

    Hi Jessica, LOVE the avatar!!! That is one of the best photos of blue sclera I have ever seen! Good job! ๐Ÿ˜‰ Usually, doctors like to use a penlight in a darkened room to see it, and will often compare to others in the room, to get some confidence. You? We can see you coming! ๐Ÿ˜‰ I am SO GLAD you captured your yellow spot! Again, best pic I have seen of this! Usually, these spots are pinguecula, but ours seem to come and go, and pinguecula do NOT. I don’t believe this is in the literature at all, but needs to be. When it happened to me, I thought, HECK, I’m an over-achieving eye doc, and I’ve NEVER seen this before!! Very frustrating. I tried EVERYTHING on it to no avail. Then one day, it was gone. It came back briefly a couple of years later, then gone again. If I was a betting gal, I’d betcha we’d find some mast cell degranulations in there, but that is nothing but pure speculation. Be sure to watch for changes to be sure it doesn’t sneak into a sarcoma (your eye doc will know). Thanks for this! ๐Ÿ™‚

    January 18, 2013 at 10:16 pm #3361
    Barbara
    Participant

    Yes, they are excellent photo’s aren’t they. I’m trying to remember what the perfusion of blood vessels through the eye-whites is called, I know I’ve come across it, as a ‘sign’.

    Thanks for telling us what the yellow lumps are called. I’ve just done a google image search and found a few that looked a little more like mine, which occured on the whites of my eyes between my nose and my iris. Mine seemed more raised and more jelly like than that shown above in the photo.

    It said it can be associated with dry eyes, which I definitely have, do you ? One of the explanations I found is “A pinguecula is caused by the degeneration of the conjuctiva’s collagen fibres.” – oh fancy that, blooming collagen causing trouble again! I wonder if increasing Vitamin C intake will help ?

    The good news is that even though I had them in both eyes, they’ve gone now.
    Regards
    Barbara
    (UK)

    January 20, 2013 at 5:31 pm #3365
    Dr. Diana
    Keymaster

    It said it can be associated with dry eyes, which I definitely have, do you ? One of the explanations I found is “A pinguecula is caused by the degeneration of the conjuctiva’s collagen fibres.” – oh fancy that, blooming collagen causing trouble again! I wonder if increasing Vitamin C intake will help ?

    The good news is that even though I had them in both eyes, they’ve gone now.
    Regards
    Barbara
    (UK)

    Hi Barb, That’s a bit YES on the dry eyes!!! I HAD to mention to you that pinguecula do NOT come and go. Our lumps are NOT pinguecula, hence my frustration with mine, when I couldn’t figure out what they HECK it was!!! One thing it’s not? Pinguecula. Back to the drawing board! ๐Ÿ™‚

    January 31, 2013 at 3:32 pm #3380
    Give My Daughter the Shot!
    Participant

    I, too, have ‘dry eye’. Also, darkened circles (which are now worse than ever – and, no, it’s not iron deficiency). I have astygmatism. Bloodshot eyes too. I don’t know about the other stuff and not really inclined to become educated about it at the moment. Oh, I do have a significant ‘pocket’/’bubble’ aka swollen under eye patch that chronically exists below my left eye. So swollen that I can actually see it in front of myself (in a lower peripheral type manner)without aid of a mirror. Stabbing pains in eyes too – dry eye?

    January 31, 2013 at 4:27 pm #3381
    Dr. Diana
    Keymaster

    Oh, I do have a significant ‘pocket’/’bubble’ aka swollen under eye patch that chronically exists below my left eye. So swollen that I can actually see it in front of myself (in a lower peripheral type manner)without aid of a mirror. Stabbing pains in eyes too – dry eye?

    Boy, it’s really hard to say without looking, but if the bubble is clear, it may be a harmless (and unrelated) lymphangectasia. That is an annoying, but harmless, collecting of lymph fluid. I have tried everything I know to drain those, and to try to keep them from recurring. They have always come back. Ugh. But as far as “things to worry about”, that is ONE thing you can pretty safely put in the “it’s OK” category. Yea!! One thing in that category! ๐Ÿ˜‰ Hang in, my friend. ;)Diana

    February 7, 2013 at 10:59 pm #3410
    JessicaLeigh
    Participant

    Thanks! I’ve often wondered about my yellow spots, they just seem so.. odd.. I have them on both eyes, and while I’m not really sure if they come and go, I’ve noticed they’re always in the same exact spot. Another funny bit I’ve noticed recently, when I’m jaundiced (as I am now, with some crazy gallbladder issues..) you can’t even see it in my eyes due to the blue sclera, unless I look to the side and then wow! …my whites definitely show it.. Strange..

    June 28, 2013 at 4:49 pm #3838
    Lab-Scientist-Lady
    Participant

    Wow. I have gray/blue sclera too. Plus dry eyes and the yellow spots. I thought the yellow spots were due to cholesterol levels being high. My levels are high. My two girls have the blue sclera too.

    June 28, 2013 at 5:08 pm #3839
    Lab-Scientist-Lady
    Participant

    A current picture of my blue sclera. It more noticeable when I am not feeling well.

    Attached files

    July 15, 2013 at 9:28 pm #3905
    robynne
    Participant

    Hi everyone,

    I was lucky enough to find Dr. Diana’s videos online and feel SO fortunate to have found this forum. I have been very ill since June 3rd with so many body systems affected, the most debilitating has been peripheral neuropathy, walking difficulties including a foot drop, and constant nausea with light-headedness. I have fainted twice and have somehow lost 10 lbs after spending a month on the couch. I have been through tons of tests at Kaiser, but have had very little luck getting a diagnosis. I have gotten very good at waiting, staying strong, and advocating for myself despite the dismissive attitudes of my doctors.

    I clicked on this link because I was curious what blue sclerae was. I was shocked to see the photos, this is exactly what I woke up with the other day. I sent images to my doctor, in the event he thought they were relevant to my symptoms. He replied saying he would ask an older doctor he works with, but that was a week ago and still no reply.

    So my question is, what conditions is blue sclerae associated with and is it a clue toward diagnosis?

    My photos are not attaching because they are too big. I will try to compress and upload them separately. Thank you SO much for caring enough to read this. Any feedback is GREATLY appreciated!

    August 21, 2013 at 10:52 pm #4158
    Lab-Scientist-Lady
    Participant

    Hi everyone,

    I was lucky enough to find Dr. Diana’s videos online and feel SO fortunate to have found this forum. I have been very ill since June 3rd with so many body systems affected, the most debilitating has been peripheral neuropathy, walking difficulties including a foot drop, and constant nausea with light-headedness. I have fainted twice and have somehow lost 10 lbs after spending a month on the couch. I have been through tons of tests at Kaiser, but have had very little luck getting a diagnosis. I have gotten very good at waiting, staying strong, and advocating for myself despite the dismissive attitudes of my doctors.

    I clicked on this link because I was curious what blue sclerae was. I was shocked to see the photos, this is exactly what I woke up with the other day. I sent images to my doctor, in the event he thought they were relevant to my symptoms. He replied saying he would ask an older doctor he works with, but that was a week ago and still no reply.

    So my question is, what conditions is blue sclerae associated with and is it a clue toward diagnosis?

    My photos are not attaching because they are too big. I will try to compress and upload them separately. Thank you SO much for caring enough to read this. Any feedback is GREATLY appreciated!

    Sorry I did not see your post. I have Ehlers-Danlos Syndrome. The Blue sclera are seen in EDS, connective tissue diseases, osteogenesis imperfecta, AIDS, Marfans, Bloch-Sulzberger syndrome, Foelling syndrome, some dwarfisms, Turner syndrome, Werner Syndrome, and a few others. It is most common in diseases of the connective tissue. My guess is you have EDS.
    Shonda

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