• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Confused, frustrated

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Confused, frustrated

  • This topic has 2 replies, 2 voices, and was last updated 9 years, 7 months ago by Dr. Diana.
Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • March 23, 2013 at 4:34 pm #419
    wastedtalent
    Participant

    At 7 years old, I broke my collar bone, right shoulder started dislocating. At 15 I was doing one arm pushups and left shoulder popped out. Hips started dislocating at 19.
    I was able to stand up as a casino dealer, play Hockey, and have a wonderful life.
    At 34 for mother asked me to stop smoking Marijuana. The first few days were indescribable!!! I figured it was withdrawals from the Marijuana, but after a month, I figured there was something really wrong! So I started seeing doctors, that was 10 years ago and I AM STILL LABELLED AS A DRUG ADDICT!!!!!!!!
    I have seen over 30 doctors in 4 states and still no diagnosis!!! My shoulders burn, my right knee dislocates, my hands hurt and I feel like I’m wearing gloves, my feet have been described as foot drop, my heart clicks when I do to much, and the pain… All I want to do is lay still and not move, the only time I have any relief is when I purchase Marijuana illegally!
    Is there anything else that would help??????

    I have heard Bayer aspirin has come out with clinical trials for “Sativex” would this help???

    April 19, 2013 at 7:08 am #3631
    Tabatha
    Participant

    Hi wastedtalent
    I’m afraid I can’t answer your question, I just wanted to say Hi I am sorry that you are having all these problems, I can feel for you, for very different reasons I have been having problems with my health since teens, been to many different doctors and given different labels, I feel strongly that my hypermobile joint could be underlying every thing, so I am going to see a doctor (I’m in England) privately who is an expert in hypermobilety and EDS to see if it all joins up. My heart went out to you, I hope and pray that you will be able to find some answers, it sounds like there is most deferenatly something going on that connects all your problems. Keep going !

    June 26, 2013 at 12:14 pm #3826
    Dr. Diana
    Keymaster

    Hi Wastedtalent, I think we all have climbed a similar mountain. I’m not sure where you live? Perhaps we could help to steer you toward someone if we knew approximately where you were located? Did you check yourself with the Beighton scale? (you can google to test, or I have a couple of videos out about the different types of EDS that explain this scale). Although it was a battle for us, some people sail right through to the right people!
    The “right people” can be anyone from a shoe-salesman, eye doctor (ahem) to a orthopedist. They just have to have some familiarity… And an open-mind! Let us know? 😉

  • Author
    Posts
Viewing 3 posts - 1 through 3 (of 3 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020