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Hello,
I have had eye problems for many years which were chalked up to a “lazy eye” by a general doctor . Later after seeing a specialist who understood brain injuries which I suffered from in 2006 I was diagnosed with a convergence disorder. For the last few years we noticed my pupils would react inappropriately to light. For example my mothers eyes would be a two where mine would be a 5 in terms of dilation (she is a medic) when both standing in the same light conditions. A neurologist recently told us it was because I had “young eyes” and hers were old. Pardon? I was unaware that made a difference, and I still believe that’s ridiculous. Anyways, a huge problem we are having is that my eyes pulse, they will go from a full blown constriction to a full blown dilation in a 3 second interval for HOURS. Going back and forth back and forth. My eyes ache with this as if I haven’t slept for days and are very sensitive to all light, although light does not change what they are doing. I went to the ER with this and the doctor treated me like I was on drugs and was incredibly rude, he put in my report that went to my family doctor that I had an “eye ache”. I have a video of my eyes doing this and we find that my right eye moves quicker then my left.My second question for you involving my eyes is seeing black and white spots, almost like they are flashing in my vision or sparkling down . They start at the top of my vision and work there way down.
Help! I’m at a loss.
Hi ashgraydon.
Do you have intracranial pressure or hydrocephalus? Interesting-I noticed just yesterday that my pupils are very slightly getting bigger and then smaller in the same light. It does not sound as obvious as yours though. I have also noticed recently that objects seem to be slightly jiggling around. And I just discovered yesterday that it coincides with my heart beat. I will be posting this separately as well. I think it has to do with intracranial pressure.
Has anyone looked on your MRI for hydrocephalus? Have you read the Driscoll Theory part two?
MJ
I just had an MRI done on Friday morning, maybe that will reveal something. How do you go about getting tested for intracaranial pressure or hydrocephalus?
Thank you for your replies. I find I get a lot of migraines and constant head pain, could this be related?I don’t know about tests, but you should ask them To check the MRI for hydrocephalus. You may want to get a copy of it and send it to Dr. Diana. There are examples in the Driscoll Theory; there are actually pictures of MRIs with hydrocephalus. You could even look at your MRI yourself to try to find it (once u look at some pics).
MJ
They check an opening pressure by doing a lumbar puncture. Just say no! I had a LP a few years ago and they failed to do the opening pressure and wanted to repeat it. I sad no way. The first time was an awful experience and left me with an headache that lasted nine months and I was unable to sit up for weeks without being dizzy and having nausea and vomiting. If you have EDS a LP can cause a variety of problems. At the time I had a brain bleed and I did not know I had EDS. They can see hydrocephalous on MRI, but it can be subtle in EDS patients. I forget what one needs to look for.
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