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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Could it be POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Could it be POTS?

  • This topic has 6 replies, 2 voices, and was last updated 9 years, 6 months ago by Napadvocate.
Viewing 7 posts - 1 through 7 (of 7 total)
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  • September 16, 2013 at 7:14 pm #577
    Napadvocate
    Participant

    Hi everyone! I’m new and slightly confused.
    I was diagnosed about a year and a half ago with Chronic Fatigue Syndrome and something my rheumatologist called amplified pain syndrome. However, recently I have noticed that it has become increasingly harder for me to stand up for long periods of time. I get extremely dizzy and start to see “floaters” in front of my eyes. My heart rate increases drastically upon standing and I can even see and feel a very strong pulse in my stomach/ abdomen. I did some research and came across this website. The symptoms for POTS seem to match up perfectly with everything I have been experiencing. I mentioned it to my mother seeing as how I’m only 18. She however, told me that it was most likely stress and that I should focus on exercising more. Although I do stretches almost every day and I am enrolled in an easy beginners ballet class. Which is also something I am concerned about because I cannot get through the entire ballet class without blacking out multiple times. I didn’t know if anyone also has these issues with CFS or if I should focus on getting testing for POTS? Oh yes, I have something with a valve in the left ventricle of my heart that causes it to move quickly or something like that (brain fog sorry). This caused me to pass out quite frequently as a young child but the last time I fainted completely was in the third grade. I have come close in the past year though. :-S

    September 16, 2013 at 8:11 pm #4349
    Lab-Scientist-Lady
    Participant

    Hi,
    What you have described sounds like POTS. Can you show your mother this website and the information on POTS?I would suggest a cardiologist for the diagnosis. You mentioned pain. Do you think you have EDS too? My first signs of the disease was all the orthodontic, dental, and gum problems. In addition I had orthostatic intolerance with the dizziness and fainting and I had abnormal scarring and healing. Then as a teen I had joint subluxations. Do you have other symptoms? If you think you have more going on a geneticist is the person to go to for a diagnosis. Welcome to the forum. I hope you can get help.
    Shonda

    September 16, 2013 at 8:30 pm #4352
    Napadvocate
    Participant

    Lab-Scientist-Lady,
    I don’t think I have EDS. none of the symptoms sound familiar. I do however have a multitude of other symptoms. For example: muscle pain, joint pain, headaches sometimes migraines, sound sensitivities, texture sensitivities, trouble getting a full breath (this is a recent one as of yesterday), brain fog, excessive thirst, frequent urination, occasional stomach problems, dizziness and black outs upon standing, feet and hands tingle when I stand, extreme fatigue, insomnia, I can’t seem to stay the same temperature for very long, loss of balance/ coordination, and more that I can’t think of right now. Does any of this sound like POTS or would it just be the CFS? Also, I haven’t been able to do more than walk to the bathroom and the kitchen because of dizziness.

    September 16, 2013 at 10:19 pm #4357
    Lab-Scientist-Lady
    Participant

    Lab-Scientist-Lady,
    I don’t think I have EDS. none of the symptoms sound familiar. I do however have a multitude of other symptoms. For example: muscle pain, joint pain, headaches sometimes migraines, sound sensitivities, texture sensitivities, trouble getting a full breath (this is a recent one as of yesterday), brain fog, excessive thirst, frequent urination, occasional stomach problems, dizziness and black outs upon standing, feet and hands tingle when I stand, extreme fatigue, insomnia, I can’t seem to stay the same temperature for very long, loss of balance/ coordination, and more that I can’t think of right now. Does any of this sound like POTS or would it just be the CFS? Also, I haven’t been able to do more than walk to the bathroom and the kitchen because of dizziness.

    Have you been checked for diabetes? The excessive thirst and urination is a sign of diabetes? It can cause the dizziness, fatigue, blackouts, stomach problems, fatigue,brain fog, etc. Please see a doctor if you have not. If your blood sugar is not in control you could be left with permeant problems and/or die.
    Shonda

    September 17, 2013 at 8:18 am #4359
    Napadvocate
    Participant

    Lab-Scientist-Lady,
    I don’t think I have been checked for diabetes but I have had a lot of blood tests in the past year and a half. Would they have been able to tell from those tests if my blood sugar was low? I hope it isn’t diabetes!

    September 17, 2013 at 9:14 am #4360
    Lab-Scientist-Lady
    Participant

    It depends on what they were looking for. To have diabetes you need to have a fasting blood sugar of 125 or more. Above a hundred it is pre diabetes. Also there is a hemoglobin A1C level that should be checked. Above 6.5 is diabetes. Above 5.7 is pre diabetes. They can also do a glucose tolerance test in which you drink a sweet glucose drink and blood is drawn after certain intervals. This one takes a few hours. It is commonly given to pregnant women to test for gestational diabetes. So if they did not preform a fasting blood draw they were probably not looking for it.
    Shonda

    September 17, 2013 at 9:27 am #4361
    Napadvocate
    Participant

    Lab-Scientist-Lady,
    I’ll definitely look into it! Thanks so very much! If I have any other questions I will certainly come here!:-)

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