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Hi everyone! I’m new and slightly confused.
I was diagnosed about a year and a half ago with Chronic Fatigue Syndrome and something my rheumatologist called amplified pain syndrome. However, recently I have noticed that it has become increasingly harder for me to stand up for long periods of time. I get extremely dizzy and start to see “floaters” in front of my eyes. My heart rate increases drastically upon standing and I can even see and feel a very strong pulse in my stomach/ abdomen. I did some research and came across this website. The symptoms for POTS seem to match up perfectly with everything I have been experiencing. I mentioned it to my mother seeing as how I’m only 18. She however, told me that it was most likely stress and that I should focus on exercising more. Although I do stretches almost every day and I am enrolled in an easy beginners ballet class. Which is also something I am concerned about because I cannot get through the entire ballet class without blacking out multiple times. I didn’t know if anyone also has these issues with CFS or if I should focus on getting testing for POTS? Oh yes, I have something with a valve in the left ventricle of my heart that causes it to move quickly or something like that (brain fog sorry). This caused me to pass out quite frequently as a young child but the last time I fainted completely was in the third grade. I have come close in the past year though. :-SHi,
What you have described sounds like POTS. Can you show your mother this website and the information on POTS?I would suggest a cardiologist for the diagnosis. You mentioned pain. Do you think you have EDS too? My first signs of the disease was all the orthodontic, dental, and gum problems. In addition I had orthostatic intolerance with the dizziness and fainting and I had abnormal scarring and healing. Then as a teen I had joint subluxations. Do you have other symptoms? If you think you have more going on a geneticist is the person to go to for a diagnosis. Welcome to the forum. I hope you can get help.
ShondaLab-Scientist-Lady,
I don’t think I have EDS. none of the symptoms sound familiar. I do however have a multitude of other symptoms. For example: muscle pain, joint pain, headaches sometimes migraines, sound sensitivities, texture sensitivities, trouble getting a full breath (this is a recent one as of yesterday), brain fog, excessive thirst, frequent urination, occasional stomach problems, dizziness and black outs upon standing, feet and hands tingle when I stand, extreme fatigue, insomnia, I can’t seem to stay the same temperature for very long, loss of balance/ coordination, and more that I can’t think of right now. Does any of this sound like POTS or would it just be the CFS? Also, I haven’t been able to do more than walk to the bathroom and the kitchen because of dizziness.Lab-Scientist-Lady,
I don’t think I have EDS. none of the symptoms sound familiar. I do however have a multitude of other symptoms. For example: muscle pain, joint pain, headaches sometimes migraines, sound sensitivities, texture sensitivities, trouble getting a full breath (this is a recent one as of yesterday), brain fog, excessive thirst, frequent urination, occasional stomach problems, dizziness and black outs upon standing, feet and hands tingle when I stand, extreme fatigue, insomnia, I can’t seem to stay the same temperature for very long, loss of balance/ coordination, and more that I can’t think of right now. Does any of this sound like POTS or would it just be the CFS? Also, I haven’t been able to do more than walk to the bathroom and the kitchen because of dizziness.Have you been checked for diabetes? The excessive thirst and urination is a sign of diabetes? It can cause the dizziness, fatigue, blackouts, stomach problems, fatigue,brain fog, etc. Please see a doctor if you have not. If your blood sugar is not in control you could be left with permeant problems and/or die.
ShondaLab-Scientist-Lady,
I don’t think I have been checked for diabetes but I have had a lot of blood tests in the past year and a half. Would they have been able to tell from those tests if my blood sugar was low? I hope it isn’t diabetes!It depends on what they were looking for. To have diabetes you need to have a fasting blood sugar of 125 or more. Above a hundred it is pre diabetes. Also there is a hemoglobin A1C level that should be checked. Above 6.5 is diabetes. Above 5.7 is pre diabetes. They can also do a glucose tolerance test in which you drink a sweet glucose drink and blood is drawn after certain intervals. This one takes a few hours. It is commonly given to pregnant women to test for gestational diabetes. So if they did not preform a fasting blood draw they were probably not looking for it.
Shonda
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