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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Could this be POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Could this be POTS?

  • This topic has 2 replies, 2 voices, and was last updated 9 years, 1 month ago by markymark.
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  • January 31, 2014 at 1:08 pm #661
    markymark
    Participant

    Dear people,

    First i would like to apologize for any grammar and or sentence mistakes made in this post. I am from the Netherlands and my English is a bit rusty.

    For a long time i have been having health problems. I am 21 years old en doctors just can’t seem to find what’s wrong. Eventually they diagnosed me with anxiety disorder. I mainly had/have physical symptoms, but because the doctors could not find an explanation, i was told it would be anxiety. When i saw the video of doctor Diana, i felt so much comparison. I always described my ‘panic attacks’ as my body going crazy, while staying calm in my mind. It felt like my body was shutting down. I have to admit, this gave me quite the anxiety, but i managed to keep it cool.

    About three days ago I bought a heart rate app to see if my resting heart rate was a low as I measured it. Indeed, the monitor app also said 55 bpm, sometimes even lower. Then I tried the standing test on the app. I knew my heart rate always rises a lot when standing up, but an increase of 50 bpm made me wonder if that is normal. My heart rate is like this:

    – At rest: 55/60
    – I stand up: it increases a bit, then I feel a pressure inside my body and my heart rate climbs to 105/110. Within a minute of standing up, it starts to drop slowly and after a minute or two my heart rate is about 70 or something.

    Could this be POTS? It would explain so much. I am not a hypochondriac, I’m experiencing real symptoms and I won’t stop searching until I have got all my answers straight.

    Thanks for reading,

    Markiemark

    February 4, 2014 at 12:55 am #4847
    dino68
    Participant

    Most of us here have been told our symptoms were caused by anxiety lots of times. Do you feel like you are having adrenaline surges when you stand. I believe POTS is diagnosed as an increase in BP by at least 30 bpm on standing but I believe the HR usually stays high. Do u feel better after you have been standing awhile? What other types of symptoms do you have?

    February 8, 2014 at 7:06 am #4858
    markymark
    Participant

    Thank you for replying.

    The symptoms i experience started with occasional nightsweats, swollen lymphs, weight bouncing (10 kg difference, normal weight is 77 kg), it feels like i’m living in a dream (sort of vertigo), sweaty hands and feet, tiredness, lack of energy, stomach problems (heartburn, pain etc), sleeping problems beacause i can’t breath true my nose at night and bruxism, constant weak legs when walking (don’t feel it when i sit), a lot of chest pressure when standing up quick and chest pressure that feels like it’s coming from my stomach.

    Later this developed in some sort of pannick attacks. Out of the blue it felt like my body was shutting down. I felt chest pressure, a saw the world spinning and got issues with my movement control. The panick was not in my head, it was in my body. I could stay pretty calm and only sometimes i panicked because i did not know what to do.

    Sometimes it is kind of scary, but i’ve been checked properly:

    Had an ECG three times
    Had an 24 holter
    Had an x-ray
    Had an echo of my lymphs, abdominal and neck
    Had countless bloodtests

    Sometimes it feels like my body is playing a joke with me, because the doctors don’t seem to know what it is.

    Thanks you so much,

    Kind regards,

    Markymark

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