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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Cromolyn Sodium and ketotifin

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Cromolyn Sodium and ketotifin

  • This topic has 5 replies, 2 voices, and was last updated 8 years, 3 months ago by Dr. Diana.
Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • December 9, 2014 at 11:11 pm #757
    corey_h
    Participant

    I have asked formulating pharmacies as Dr. Diana stated to price me out a solution for cromolyn sodium at 200mg/5 ml for 4x/day since through CVS $1500 pmo and Walgreens $1900 pmo. 2 of the pharmacies state that its close to the amount that cvs and walgreens are charging.

    Does Dr Diana’s pharmacy do mail-order?

    I have also been told that ketotifin through another forum (not a pharmacy) would be the alternative. Is this correct?

    Corey

    December 10, 2014 at 3:15 pm #5167
    Dr. Diana
    Keymaster

    Hi Corey, I’m afraid I don’t have a pharmacy (nor am I a pharmacist). Your pharmacist can likely answer your questions more accurately than I can, but as a patient I will tell you that ketotifen is not an exact substitute for cromolyn, but it does have both antihistamine and mast cell/eosinophil calming properties. Many of us end up with ketotifen for many reasons — not the least of which is the expense and bother with cromolyn! Here is a video I did about saving money when getting cromolyn: http://prettyill.com/videos/watch/cromolyn_sodium_costs_how_much

    December 10, 2014 at 5:52 pm #5174
    corey_h
    Participant

    Maybe my questioning was incorrect. In your video on cromolyn pricung you stated that you go to a formulating pharmacy to make yours in a 200mg/5ml strength costing you $90 per month. My question is, are you able to refer is to that pharmacy that makes your scripts pending they provide mail order service. The issue I am running into is the formulating pharmacies in my location are stating this…. “The only time we are allowed to compound a medication that is commercially available is when there is a ‘therapeutic’ need for the compound (i.e. allergies, different dosage forms, tailored strengths, etc.).”

    Thank you kindly.

    December 10, 2014 at 6:40 pm #5175
    Dr. Diana
    Keymaster

    Oh, I see! I guess we all need to understand that a prescription is required. With the prescription, THEN any formulating pharmacy should be able to help you. 😉

    December 10, 2014 at 9:24 pm #5176
    corey_h
    Participant

    Well, yes. But that was not the question.

    More direct. Can the followers of prettyill.com submit their prescriptions to the pharmacy that Dr. Diana uses since other formulating pharmacies do not provide that service?

    December 11, 2014 at 10:53 am #5178
    Dr. Diana
    Keymaster

    I’m afraid my pharmacy won’t ship. Honestly, cromolyn sodium may not ship well — short shelf life and it needs to be refrigerated. I am surprised, though, that anyone is having trouble getting this formulated… I wonder how others are faring?

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