- This topic has 2 replies, 2 voices, and was last updated 3 years ago by .
- You must be logged in to reply to this topic.
Dear Dr. Diana,
I’m wondering what your thoughts are on the Deborah Cusack protocol? I just found out about this on Christmas Day thru the inspire EDS community. Her work is inspiring like yours – similar situation. She had all the associated problems of this disorder and so did all of her children. She became the ferocious mother bear that you became to help treat herself and her children. I admire you both so much. Paving the way to try and educate doctors and medical personnel all over the world while using yourself as guinea pigs to better the lives of your children. Hats off to you and her both. Talk about the love of a mother……..
Do you have any thoughts as to how both of your protocols could work together, or instead of in some cases? I’m interested in what you think about the Aloe Vera distilled liquid? Or for that matter any of the supplements she uses.
Thanks again for all you do for our community.
Hi Terriann, Where I struggle, is understanding that many folks have genetic disorders of connective tissue — unless we can change our genes, we can’t grow unaffected connective tissue. We can prevent damage, and repair damage (to some degree), but our genes dictate the type of connective tissue we have. Thus, supplements can’t make us grow different connective tissue. Does that make sense? It’s the same issue with stem-cells that come from our own body. The same genes result in the same connective tissue. 🙂
That does make sense Dr. Driscoll. From what I’ve read she does say that within 72hrs of stopping the supplements all of her issues come back. What a journey this has been for all of us. Thank you for all of your hard work and dedication to the cause. Blessings to you and your family.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross