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I am having symptoms that my doctor thinks could possibly be POTS. You know, the dizziness, heart palpitations, faint feeling, all when I stand up or bend over and then back up again, along with constant fatigue.
My doctor ordered an ultrasound of my heart – which found nothing, which is odd because a doctor a year ago said that I have a heart murmur. So now my GP is sending me to a POTS specialist.
But what’s weird is that my symptoms disappear, and then come back, and then disappear. It’s like my body is trying to play hide and seek with me. It’s highly annoying. Last week, I was dizzy all the time. Now, I can stand up like a pro. Sometimes.
Anyone else have this experience? Is this common with POTS?
Hi, Yes I think the relapsing/remitting pattern of POTS is caused by our highly fluctuating intracranial pressure – just my observations mind.
That happens to me. Some days are fairly normal (no faints) just nausea, pains, fatigue, etc., but on some days, something will “trigger” a sudden drop in my BP and then comes the syncope, tachycardia and fainting. Sometimes I make it to a soft surface to fall or get horizontal on and sometimes I don’t and I get banged up. I’ve been able to correlate the episodes with times when I was having a good day but did too much activity (because I was feeling good,) there are the times when I had been bending, stooping and reaching a lot, gardening, standing in hot weather, or overheating myself within my A/C home, standing in line for the public restrooms at a large event, after taking a shower, at the grocery store, standing while rolling my hair or putting on makeup. 3 times I was sitting on the toilet coping with IBS cramping. Which makes me wonder, Is true POTS an EVERYTIME you rise illness? Something a TTT can markedly reproduce? Maybe I have a remitting/recurring variety. I think I need a heart rate monitor.
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