December 5, 2014 at 8:21 pm #753
I was just wondering what is the “usual” dosage people use for a trial of diamox to see if it will help with symptoms? I know everyone is different and people tweek their dosing.
Is there a specific one I should ask for? For instance, is there an extended release or should I just request the regular diamox? I am still trying to find a doctor that is willing to prescribe a trial of diamox for me, but so far no luck.
~KellyDecember 6, 2014 at 2:47 am #5153VioletParticipant
Get regular, not extended release.
Typical start dose is 250mg. Personally l want to start with 125mg. I usually have to take low doses of everything.December 6, 2014 at 9:44 am #5154BarbaraParticipant
Me too, I started with half a tablet (125mg) and worked up, when I was getting too much I started having hand contractures, so once I realised what was causing these, I lowered it and things went better.
Dr B from TCI told me to take one 250gms tablet 3 times a day, so I think that must be the recommended dose to lower intra-cranial pressure.December 6, 2014 at 1:33 pm #5155
In an effort to help everyone with the nuances of Diamox dosages, I’ve included an exhaustive summary of suggestions in the new book — I hope it is hugely helpful. 😉 http://prettyill.com/the_driscoll_theoryDecember 7, 2014 at 12:13 am #5156
Thank you soooo much for everyone’s reply!
Dr D- I have one small problem… I only have access to internet through my phone and I can’t download a PDF!!! And I would love to purchase the book… Im sure this question has been asked a million times, but is there any possible way to purchase the book in another way other than PDF???
Thanks again 🙂
KellyDecember 7, 2014 at 11:23 am #5158
The book is only in PDF form, currently. Do you think a friend of yours could help you download a PDF, perhaps? Fingers crossed… 😉December 10, 2014 at 12:34 pm #5165
Unfortunately I dont have access to a computer 🙁
But I finally found an amazing integrative medicine doctor who prescribed me diamox but the pharmacy filled it as an “extended release” since she prescribed 500 mg twice daily… Now we’re going back and forth between the doctors office but they think it’s ok to take the extended release but I think it would be better to take 250 three times a day.
Why should we avoid the extended release?
i just want to use what will work!
KellyDecember 10, 2014 at 3:04 pm #5166
Great question! Being on both sides of this (doctor and patient), I will tell you that *almost* always, the patients respond better with the “regular”, not the extended release form of Diamox. I put this in the “Diamox pearls” section of the book because it is something that most eye doctors agree on, we mention it to each other on occasion, but I doubt it is in a published journal… If it is a problem, you could always try the extended release, and if you don’t get enough relief from your symptoms, then gently request a trial with the “regular” Diamox. Fingers crossed! 😉
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