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- This topic has 4 replies, 3 voices, and was last updated 10 years, 9 months ago by Barbara.
May 23, 2012 at 9:34 pm #194JillyParticipant
Is single-eye double-vision common in EDS/POTS?
I’ve had it for about 4 years now. At first my eye Dr sent me to a retinal specialist, who didn’t quite believe me at first (it’s actually “triple-vision” haha). He did one of those topographical type scans of my retina & found I had a macular pucker. A re-scan a year later showed it disappeared, but I still have double-vision in that eye.
I think my brain is compensates for it but I wear an eye patch at times.
Thanks 🙂May 24, 2012 at 4:02 pm #2206PalominoMorganParticipant
I get double vision in one eye. Worst in the mornings when I first wake up or when I get a migraine (late in the day). I suspect mine are from CSF pressure spikes which cause my brain to go further out of my noggin, stretching the cranial nerves affecting the eyes.May 28, 2012 at 8:13 am #2233BarbaraParticipant
I too can get double vision in one eye. It’s not there all of the time, it comes and goes. I can see two sets of facial features for example, one set directly above the other.
(UK)June 27, 2012 at 12:03 pm #2490jthomp7Participant
my daughter is 21, she has EDS,POTS and has had double vision since she was 6, she has had 4 eye operations over the years with poor results. She has double vision with both eyes, with one eye covered she has single vision for a short period of time. I have always thought her vision and EDS is connected.She has had toxin injections, patches, with no success. She is under the care of prof Grahame at UCL for her EDS, he has said its not common to have double vision with EDS,Great Ormond st and Moorfields also thought her health issues were not connected. EDS is a connective tissue disorder,eyes are 80% connective tissue, I’m only a mum, what do i know!.June 27, 2012 at 4:06 pm #2491BarbaraParticipant
I have to say that, although I’ve obviously had EDS all of my life, I never suffered double vision before my head and neck injury, it was only afterwards, so there’s obviously something else contributing but I still think EDS pays a big part. It’s intermittency (in my case) is linked, I think, to the fluctuating intracranial pressure. I think the double vision comes on when the pressure reaches a certain level.
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis!
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