February 19, 2012 at 11:13 pm #114
I’m used to being dizzy when I stand up but now, every time I lay down, for about the first 2-3 minutes, I get wildly, room spinningly, dizzy. As crazy as it sounds, I end up feeling like I’m going to fall (or get tossed) out of bed. Once that subsides…and there is always a low level dizziness that remains and that flairs up when I roll over in bed. Afterward, I’m left with an ugly headache…..feels like my head has been put under pressure…or is being pressurized….who knows.
This has been going on for about a month now. It’s gotten to where I just go ahead and take two Aleve and an extra strength Tylenol before I go to bed…otherwise I won’t be able to sleep due to the headache. Sadly, this symptom seems to be here to stay.
Is this sounding even remotely familiar to anyone? If so….any tips, tricks or advice for coping with it?
Geeze….I get the bed/room spins…and I don’t even drink. How crazy is THAT?
HHFebruary 23, 2012 at 7:49 pm #1766sarahdionnaParticipant
The dizzy, spinning, falling through the floor or mattress feeling was a common thing for me for quite a while a few years ago but now it is a rare occurrence. I have no idea what caused it or what made it better. I know that doesn’t really help you but maybe yours will get better on its own like mine did. I still have the headaches with laying down though. I have actually been waking up with headaches almost everyday for the past month or so.
I do get really tipsy feeling every time that I eat but I don’t feel like I’m falling or spinning around while floating like I do with the laying down thing. Eating feels like I had 2 drinks and the laying down sensations felt like I had about 5 to 7 drinks. That said, I am a lightweight and get cut off way before others do. Lol.
Since you compared it to drinking…February 23, 2012 at 7:52 pm #1767sarahdionnaParticipant
I just thought of something. A person gets a hangover because of dehydration. I don’t know how much water you drink each day, but maybe an extra glass could help. My frequent spells were in the summer time when it was hot and maybe I was a little dehydration or something. Idk. It wouldn’t hurt to try a little extra water though.February 26, 2012 at 9:38 pm #1769
I drink enough water to float an armada. Around 2 gallons per day…more in the summer. It is very rare to see me without a drink in my hand. If I’m not carrying one, you can be assured that I have one sitting nearby. I also eat enough salt to make my mom, aunt and brother…all nurses, cringe. Pickles, chips, salt on lemons, salt on avocados and, heaven help me, sometimes pouring it straight into my hand and eating it in pinches.
I’ll be so happy when I hear from Dr. Francomano and get an appointment….maybe she’ll have some insight as to what it might be…..I hope!
My other new symptom is chronic heartburn and a pressure in my throat. My dad has a hiatal hernia and that is how his symptoms started out so it makes me wonder. Zantac and Tagamet have become my bestest buddies….LOL! But seriously..it’s bad enough that it causes me some pretty serious nausea. Not much fun at all.
HHFebruary 29, 2012 at 8:17 pm #1772PalominoMorganParticipant
I had a period like this in college. Never did figure out what brought it on or what caused it. I remember laying in my bed in my apartment and feeling like it was going to toss me out the window it was spinning so much. It was horrendous. The meds the health center gave me knocked me flat out too, even taking half doses.
Try looking up Meniere’s Disease. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001721/
Eagle Syndrome (a long shot but I was recently dx with this after years of symptoms). http://en.wikipedia.org/wiki/Eagle_syndrome
Let us know if anything improves.March 4, 2012 at 2:40 am #1775
In reading both…I’d have to say that Eagle Syndrome would be the more likely of the two based on symptoms. Ah…yet something else to put on my list of things to rule out (or, conversely, verify).
You are a regular fountain of knowledge Palomino! Impressive! Too bad you, and so many of us, have to come by it the hard way….trial by fire. But I DO appreciate you sharing this with me! I had never heard of Eagle Syndrome!
HHMarch 4, 2012 at 10:06 am #1778PalominoMorganParticipant
HorseHappy, you are very welcome. I too had never heard of it until the neurosurgeon pointed it out in my CT scans. CT images that had been declared “normal” by a well-respected radiologist.
I joke with Dr. D that I’m getting my M.D. one residency at a time as my symptoms dictate. 🙂 I won’t make it to nursing school to get my RN and then NP, but I can help as much as I can this way. I still have a few brain cells left to rub together some days. At least for a while. 😉March 7, 2012 at 3:02 am #1792JandroidParticipant
Dear HorseHappy: I’m blessedly not dizzy much at all – yet;). But I also gobble salt like there’s no tomorrow as you described. (My friends were just admiring my gourmet salt collection the other day – I’ve got a bunch: himalyan pink, fleur de sel, sel gris, etc.) Almost nothing surprises me any more with this lousy condition. (I’m EDS probably Type III hypermobility as far as we know.) I wrote it off to being adrenal fatigue, which may indeed be the case. My doctor does not seem concerned in light of this yet. I’ve started joking about needing to carry a salt lick;). Only half-joking, though.
That said, I just made myself dizzy earlier today in PT when I applied an SI belt, which pulled my tail bone down, which my (EDS-friendly) PT said could have caused pressure way up in my lower head making me dizzy then. (I always knew the butt bone was connected to the head bone lol;). I have found no pattern to my as yet blessedly very mild dizzyness otherwise, yet. (Infrequent enough to not be able to tell yet, thank God. I really feel for you). I’ve only recently started having POTS attacks which I have been able to stave off with Gatorade so far recently (knock wood). I have felt borderline dizzy when my BP rises though too.
I hope your dizzyness eases soon for you, one way or another (treated or not). Cheers,
Jandroid the hypermobile android
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