July 11, 2015 at 8:33 pm #868
I have noticed that when my pain is worse on days that it’s not I crave sugar. I was just wondering if anyone else has noticed this about themselves.
I’ve been taking d-ribose for my muscles and I notice that I’m not craving sugar because my muscles feel better and d-ribose is a sugar so I’m wondering if the muscle weakness has something to do with the type of sugar that d-ribose is that we might be missing.
I started this on a Thursday and I could not stand longer than 3 mins without getting very potsy and tons of extra pain and having to rest for hours afterward and then on Saturday, two days later, I climbed stairs that were at a huge amphitheater from way down at the very bottom and I was not dizzy, out of breath, sweating (in TX), and I went with the flow of traffic leaving the amphitheater and my face wan’t red and I didn’t have to stop and rest on the way up nor did I need to sit down when I got to the top and I was able to stand for another 30 mins plus walk out into the parking lot to the car. Two days after that I stood for an hour cleaning our my fridge, bending down and standing up rather quickly several times and went to sit down to get a drink and I didn’t even know that it had been an hour, and it only took me 15 mins to rest and I went back and cleaned for another hour. I was amazing. It has been a month and a week and I have had a bit of extra heart burn from the arginine so I have cut back some but I did what was said on the video and I am not feeling as good as I did those first few days but my all over aching is greatly reduced, my daily headache is gone, and my thinking is lots more clear that it had become. I still am super super tired so I hope that part that helps that that kicks in soon.
Also I am really overweight and I have lost 100 pds this last year, and I need to do that one more time, but one thing that I found out is that I have hypothealmic obesity because of EDS and also because for my type of EDS I make too much cystine which overrides the arginine, too much cystine can cause you to gain weight but the arginine helps control the leptin hormone which tells you if you are hungry or not and let me tell you, I have not been hungry at all since taking the arginine. That is just about my favorite part of the whole thing. lol
Hope this wasn’t too much info.July 13, 2015 at 5:41 pm #5572Dr. DianaKeymaster
I don’t know if this helps, Amy, but many of us seem to get worse pain after eating sugar… We are puzzles, aren’t we?July 14, 2015 at 5:01 am #5573
Lol…. I have that trouble as well….. have mercy. I often think that lots of things we have are vicious circles.September 3, 2015 at 12:21 am #5651BendyH2OheadParticipant
I always crave sugar when my pain is worse, but have just assumed that is because that is how I learned early on to comfort myself, by using food.vHowever, I have also read that sugar acts on the opiate receptors inthe brain, so can make you temporarily feel better. As sugar is known to aggravate inflamation, induce premature aging and a host of other ills,it is most likely better avoided or consumed in moderation. Need to take my own advice, have become quite the sugar addict!!October 25, 2015 at 11:11 am #5675
I knew there had to be something to it. I do know that sugar can make infection worse and pain worse. I never thought about the comfort aspect of this, but you are right. We learn early on to comfort ourselves and mostly with food and what tastes the best?, SUGAR…. darn it.
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