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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Drinking water made POTS symptoms worse until I almost passed out. Anyone know why this could be?
I am menstruating just now so my symptoms are ten times worse than usual, but the POTS symptoms unbearable. I don’t drink a lot and never seem to feel thirsty until I’m very dehydrated. I decided to force myself to increase fluids and oh my, I had this attack where i felt like I was on a Waltzer at a fairground and strange headache behind my eye. I also started to get a lot of pain in my neck which I suffer from daily, struggle to hold head up but it was not so bad until
I drank the water. Could this mean high CSF pressure? I know Dr Diana posted about a drug for low CSF doing this, would water do the same if you have high csf pressure? I did take a diamox that I bought as a precaution to try, if the water didn’t help and the diamox did seem to help initially but I got pins and needles and felt so tired and then the symptoms came back later, but worse than earlier but I was better for a few hours inbetween after taking the diamox. I’m trying to work out if the diamox helped, or I just felt better by myself and the diamox kicked in later on and made it worse. The same happened yesterday so I’m still confused. I eat a banana later on though and took vitamin c and last night I felt okay. So confusing…
Hi Shelbo, How much water did you drink? If Diamox was helping for a while, then stopped or made symptoms worse, it could be that your CO2 was shifting. We need CO2 to remain at or above 22mmol/L to work. Are you and your doctors monitoring your electrolyte levels? It’s essential, believe me! 😉
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