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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Dysautonomia and our Vascular Irregularities — the video is OUT! Any questions?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Dysautonomia and our Vascular Irregularities — the video is OUT! Any questions?

Viewing 5 posts - 1 through 5 (of 5 total)
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  • January 7, 2013 at 5:32 pm #387
    Dr. Diana
    Keymaster

    Dr. Diana discusses vascular abnormalities (and their treatments) found with EDS and dysautonomia. Does CCSVI mean “angioplasty is needed”? Let’s discuss the need for systemic treatment.

    January 11, 2013 at 2:57 pm #3316
    Prettytired
    Participant

    I assume the systemic treatment is something you’re still working on & is NOT released yet?

    My neurologist is sending me for a CT Angiogram of the head/neck next Wednesday. I expect it to be abnormal, but want to address it properly without angioplasty!

    January 11, 2013 at 3:08 pm #3317
    Dr. Diana
    Keymaster

    I assume the systemic treatment is something you’re still working on & is NOT released yet?

    My neurologist is sending me for a CT Angiogram of the head/neck next Wednesday. I expect it to be abnormal, but want to address it properly without angioplasty!

    Right you are, Prettytired! Pedaling as fast as I can over here! I hope I was able to speed this up by using my body as a guinea pig! You will enjoy hearing about my “mis-steps” and what happens when too much of any one medication is ingested. 😉 But I REALLY want us to “fast-track” this. OK, back to work I go! 🙂

    January 13, 2013 at 4:23 pm #3335
    McKenzie
    Participant

    Thank you for all the hard work you are doing to solve this thing Dr. Diana! I am patiently waiting for the day when you release your findings. Anything I can do to help with the trials, please let me know! I’ll be a willing guinea pig too, just live too far away from you!

    January 13, 2013 at 4:46 pm #3336
    Dr. Diana
    Keymaster

    Thank you for all the hard work you are doing to solve this thing Dr. Diana! I am patiently waiting for the day when you release your findings. Anything I can do to help with the trials, please let me know! I’ll be a willing guinea pig too, just live too far away from you!

    Thanks so much, McKenzie! I WISH you were closer! But patients really needed to be close by for the testing… (How brave of you to offer, knowing you were too far away! ha. Big hug…

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