- This topic is empty.
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Eagles syndrome and EDS
I’m wondering if anyone has heard of Eagles syndrome being related or caused by eds. I have chiari, syringomyelia, eds and had decompression and fusion in 03 at North shore hosipital in Long Island with dr milhorat. I had another fusion 7 months ago. I have continued to have problems and was recently told he believes I have eagles syndrome. And possibly tc. I’m in the process of having additional tests. I have been suffering with chiari for over 30 years and believe I’m pretty educated on the disorders but this is the first time I am hearing anything about eagles syndrome in eds patients. Dr b said this is relatively new information they are discovering. Has anyone else heard of this, been told this, or no any info?
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross