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I’m wondering if anyone has heard of Eagles syndrome being related or caused by eds. I have chiari, syringomyelia, eds and had decompression and fusion in 03 at North shore hosipital in Long Island with dr milhorat. I had another fusion 7 months ago. I have continued to have problems and was recently told he believes I have eagles syndrome. And possibly tc. I’m in the process of having additional tests. I have been suffering with chiari for over 30 years and believe I’m pretty educated on the disorders but this is the first time I am hearing anything about eagles syndrome in eds patients. Dr b said this is relatively new information they are discovering. Has anyone else heard of this, been told this, or no any info?
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