August 18, 2012 at 8:21 pm #291ScaredSingleMamainMarylandParticipant
Does anyone find eating triggers their symptoms? Why might that be? I go thru bouts where every meal I eat triggers a rushing sensation from my abdomen to my chest, tachycardia, chest pain, bowel urgency, nausea, high BP, dizziness, pressure in my head, and sometimes lung pain or shortness of breath. Right now this episode also includes neck pain as well. I want to stop eating to avoid feeling these episodes which really feel like I am going to die in those instants. I know I have to eat but this is so horrible. If anyone has any tips on how I might reduce this, I would be extremely grateful.
Ang.August 20, 2012 at 7:01 am #2779dinydeekParticipant
I am not sure what you are eating- but, with Abby we kept a food diary. Anything that triggered those symptoms we removed. There are a lot of moderate histamine and moderate histamine foods that are often not listed commonly. Cinnamon was one we had to remove right away- she has such a huge list!
Abby has allergies, intolerances, cross reactivity, oral allergy, and histamine intolerance- needless to say the list is ENORMOUS that we have had to remove. My favorite book for lists and charts and explaining all the potentials with different foods/chemicals is,
Dealing With Food Allergies by Janice Vickerstaff Joneja PhD, RD. That book is what I call the allergy/food bible! 🙂
I believe on the Mastocytosis Canada website on either their links or resources page there is a link to her clinic. I don’t think I have found anything written by her that discusses autonomic,POTS etc but she “gets” MCAD’s.
Keep in mind, for everything you remove, you have to consider a worthy nutritional substitute. A full elimination diet should be supervised by a Dr. or specialized nutritionist.August 20, 2012 at 10:31 am #2781ScaredSingleMamainMarylandParticipant
Thank you for the reply! It seems like I go thru phases where eating anything ore than a small snack triggers symptoms. Then I wil be okay for a while. I have to try to better track if any certain foods always cause me trouble. Lately, everything from pizza, to sandwiches, to a milkshake, to steak ad vegetables, etc. Have made me. Feel worse afterwards. I had wondered if it was something to do with digestion and maybe not as muuch the certain foods. I have eaten these same meals before with no problem and like I said it comes in phases (a few days to a week or two where I feel worse after every meal) and then for a few weeks eating causes me no issues. Anyway, thank you again for the replyq I am going to look into the info youu suggested.
Ang.August 20, 2012 at 10:48 am #2782dinydeekParticipant
Well, pizza is 9 times out of ten full of preservatives( pepperoni and other deli meats are not good choices for anyone, but especially food sensitive folks) has MSG which is a know trigger of symptoms and is likely in the pizza, or dairy, or gluten, or tomato(on the no list for histamine) Fast foods, and prepared foods are tricky to pinpoint what exactly you are reacting to… they use lots of chemicals in the processing, preservatives, and hidden allergies everywhere 🙂
Maybe if you “take a part ” a pizza and trial each part? Eat some just pepperoni and give it a couple hours- if symptom free move on to the tomato- if symptom free move on to the crust.. etc.
It is tough to give up foods that give us comfort, and that we are accustomed to- but, Abby has done gobs better when we figure out and remove the culprit item..
Hang in there and hope you feel better soon,August 21, 2012 at 10:59 am #2785PrettytiredParticipant
I went through a phase that lasted a few months. Randomly, I would feel sick after eating. Most often, it was overwhelming fatigue… a few times I laid on the floor of my cubicle for 20 minutes to get through it. Then it would pass and I could go about my day.
This hasn’t happened in quite some time, so I’m not sure why it was happening. I kept thinking it had something to do with the vagus nerve reacting to the contents in my stomach and sending an inaccurate message to the rest of the body to shut down.
- You must be logged in to reply to this topic.