EDS eye questions

[Jicky]

I have EDS and some eye issues that I wonder if anyone else shares? First, I have had floaters all my life and I know these are normal, just saying I have them. I had premature liquification of my vitreous. Is this common in EDS? Also, last eye exam the doctor mentioned transillumination of my iris. Is this something seen in EDS? Should I investigate it further? My eye pressures were 19 and 20 at the time.
Thanks

[Dr. Diana]

I have EDS and some eye issues that I wonder if anyone else shares? First, I have had floaters all my life and I know these are normal, just saying I have them. I had premature liquification of my vitreous. Is this common in EDS? Also, last eye exam the doctor mentioned transillumination of my iris. Is this something seen in EDS? Should I investigate it further? My eye pressures were 19 and 20 at the time.
Thanks

Welcome to the family, Jicky! These things can mean so many different things, Hon, it is impossible to say what is happening without examining you. Interestingly, I was going to put out a video (but lack the time!) about floaters. Sometimes we assume too easily that they are ‘normal’, or our doctors think of retinal or vitreous detachments only. My hubby had a patient with ‘floaters’ last week, but the cause was actually a central retinal artery occlusion (a blood clot) — and blood clots are not uncommon in our conditions. Yikes. BTW, the ocular pressure readings really don’t mean much without knowing your corneal thickness (pachymetry reading — very important for EDSers!). With transillumination of the iris, you may be more prone to some types of glaucoma, and those pressure readings (with corneal thickness) are crucial. One of the patients in our study had pressures of 11 and 13 mmMg. Less than 20 or so is usually ignored, right? Well, she is on glaucoma medication (and Diamox) today because her corneas are SO thin… This makes the pressure reading inaccurate. Do you have a copy of the EDS and your eyes book? It may help… (

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