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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

EDS/Mast Cell/Dysautonomia Connection?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS/Mast Cell/Dysautonomia Connection?

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  • October 19, 2011 at 4:32 am #1537
    Chicken Boo
    Participant

    I’m trying to get my head around all this and struggling a bit due to awful brain fog at the moment but I am due to be having some histamine allergy testing on Friday – would this be for the same sort of thing?

    October 24, 2011 at 2:34 pm #1540
    Dr. Diana
    Keymaster

    :red:conjecturing…wondering…

    came across posts by EDSers today that find anti histamines just dont work for their allergies… might adding in (or replacing ppi s with)
    zantac or similar possibly make the anti histamines work??????
    any idea?
    xxg

    Boy, that’s hard to say without checking with each person individually. It’s possible they are not on enough, or they may need H2 antagonists also. If it is mast cells causing the issues, they may also need a mast cell stabilizer. There are other drugs that target certain mast cell mediators, and those may be needed, too. It’s tough to tell… 🙂 Diana

    November 14, 2011 at 9:12 pm #1583
    Dr. Diana
    Keymaster

    :red:conjecturing…wondering…

    came across posts by EDSers today that find anti histamines just dont work for their allergies… might adding in (or replacing ppi s with)
    zantac or similar possibly make the anti histamines work??????
    any idea?
    xxg

    Hi Bearcat, mast cell disorders are cousins of allergies, but are not allergies. I know, it’s confusing. PPI’s won’t help (or hurt) with allergies or mast cell treatment. I can’t really offer any insight for your friends with allergies (I don’t know anything about their condition, treatment, etc). 🙁 Diana

    November 26, 2011 at 11:09 pm #1592
    Dr. Diana
    Keymaster

    sorry -oops- just to be totally clear…

    do/can I add the zantac (on top of the ppi) or do I take it instead of the ppi?
    xxg

    Yes! You can take both (check with your doctor, of course). 🙂

    September 11, 2012 at 1:19 pm #2915
    MGC.
    Participant

    Thanks Everyone!

    September 18, 2012 at 3:12 pm #2936
    MGC.
    Participant

    Thank you!

    November 6, 2012 at 4:16 pm #3108
    Sunshine
    Participant

    This thread is over 90 days old and will be closed. Please feel free to reopen the discussion by clicking on “New Topic” in the upper right hand corner of this page. Thanks!

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