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October 21, 2016 at 7:14 pm #1051MJParticipant
ENT says turbinates enlarged in left nostril blocking airway. 95% of the time, NO air can pass through that nostril. ENT says autonomic nervous system controls the turbinates so it is my dysautonomia causing this. I think this goes WAY deeper. I can feel pressure and flow changes on the bridge of my nose – feels like blood flow, but could be CSF? Pain and pressure in head so severe – lightest sunglasses hurt bridge of nose. And when take them off I can breathe deeply. I am having issues with the turbinates, mostly left side, but when both – that’s trouble. I can’t think straight or even put sentences together. It’s crazy and painful. Anyone with anything similar with turbinates? ENT says surgery not an option bc of EDS won’t heal well.
I THINK THIS IS LINKED TO THE CAUSE OF MY SYNCOPE AND POTS. Before passing out on tilt take, had tremendous pressure on bridge of nose. Same thing when POTS really bad. When it is only left nasal passage blocked, I can deal with it. But when both are blocked my symptoms are unbearable. Can enlarged turbinates block or hinder CSF flow? Anyone with anything similar?
Can a vasospasm of 70% in right subclavian affect blood flow to bridge of nose? Maybe it’s backing up?
Also, thyroid – may have Hashitoxicosis. Intense vascularity right side & heterogeneous. Can thyroid hormones affect turbinate activity?
I AM SO FRUSTRATED! I FEEL LIKE ALL THE ANSWERS ARE RIGHT IN FRONT OF ME, BUT NO ONE IS PUTTING THE PIECES TOGETHER. I WISH DOCTORS WERE MORE KNOWLEDGEABLE ABOUT EDS!!!
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