- This topic has 3 replies, 2 voices, and was last updated 9 years, 6 months ago by
.
-
Posts
-
For a few weeks I’ve been having flashes of light in the outside corners of my eyes several times a day. I saw my ophthalmologist yesterday and he said everything looked good as far as his exam could reveal, but he referred me to a retina specialist for a more through retina exam because of the EDS. Is there any other cause of these flashes besides retinal tear or detachment? Anybody else experience this?
For a few weeks I’ve been having flashes of light in the outside corners of my eyes several times a day. I saw my ophthalmologist yesterday and he said everything looked good as far as his exam could reveal, but he referred me to a retina specialist for a more through retina exam because of the EDS. Is there any other cause of these flashes besides retinal tear or detachment? Anybody else experience this?
Hi Megha, do you notice this out of both eyes simultaneously? Do you ever get a headache afterwards? If it is not simultaneous retinal tears/detachments (I doubt it — one, they don’t usually detach simultaneously, two, it has been going on for weeks, and three, your eye doc looked in there). If the retina/vitreous is OK (vitreal detachments are usually harmless, but more likely to occur in both eyes simultaneously), then I’d lean toward a migraine episode. You don’t have to have a headache with this (most people don’t, actually). When I first got sick, I had it happen a few times a DAY. I knew what it was, not scary, but a real pain, especially if you are DRIVING when it happens! Let us know? 😉
Hi I am 38 years old, I also get flashes in my eye. Apparently it can be caused by traction or a posterior vitreous detachment. I am severley myopic, and with recent worsening of flashes and a large floater I was referred to my eye clinic where I have been diagnosed as having macular schesis, which is separating of retinal layers – this may lead to retinal detachment so they are doing 3 monthly checks and I have to monitor my vision using an amsler grid.
My other (and only other !) referrals in the past couple of years are for endoscopy – I have reflux, for an echocardiogram I(after having a rapid pulse and my doc finding a murmur) the murmur being benign, and more recently rheumatolgy for painful joints, my beighton score is at least 6, the rheumatolgist says I have hypermobile joints but does not think I have a connective tissue disorder.
I have severe myopia, reflux, asthma, hypermobilty, nearly died in childbirth due to haemorrage – a tear that friable and wouldnt stitch and an atonic uterus, also my optometrist asked me to go to my GP and tell them my vessels were tortous – but my gp didnt think it was anything. I am tall and thin. My dad has an aneurism in his brain stem. Am I wrong in thinking I could have a connective tissue disorder or should I be unconcerned, after all if there was a connection between these referrals wouldnt my GP realise ?
Am I wrong in thinking I could have a connective tissue disorder or should I be unconcerned, after all if there was a connection between these referrals wouldnt my GP realise ?
Hi Nellie, Welcome!! I had to chuckle a little bit at your last statement. Unfortunately, MOST GP’s in my experience, are uncomfortably out of their element with connective tissue disorders. We are patients ‘on the fringe’ and so the doctors cringe. (ha). I don’t know how your rheumatologist differentiated hypermobility from a connective tissue disorder — if it was just a guess, you may want to see a geneticist who is familiar with the clinical diagnosis of EDS (can you take a peek at my video about how to find a doctor? There’s some advice there. At a minimum, I would think a skin biopsy would be in order… You and your family have many of the markers of a connective tissue OR a fibrillary disorder (“Marfanoid Habitus”) and you’ll want to be sure other similar conditions are considered. I think that we can’t usually go wrong when we listen to our gut and your gut is saying something is up. Right? Sure — it may be nothing, but I remember the relief I felt when I actually had a diagnosis. I finally knew the name of the beast I was fighting! Let us know? Big hug…
- You must be logged in to reply to this topic.