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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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From Laying Down To Passing Out?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › From Laying Down To Passing Out?

  • This topic has 1 reply, 1 voice, and was last updated 10 years, 6 months ago by Barbara.
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  • September 9, 2012 at 12:02 am #308
    dancechick4728
    Participant

    Can anybody else not tolerate laying flat on their backs? Every time i lay flat on my back i start to get light headed. But the real trouble starts when I go to sit up. The longer i lay flat the dizzier i am when trying to sit back up. If i lay to long and try to get up with out going very slowly I end up passing out. Hoping someone can give me some advice or relate to this problem.
    thanks for reading:)

    September 9, 2012 at 6:39 pm #2905
    Barbara
    Participant

    Yep, laying down is real bad for me. Following a bad backwards fall in June 2002 I started with the slow progression of neurological decline. Night-times were problematic and by Nov 2002 I decided to carry out a ‘positional’ study because I knew position had something to do with the extent of symptoms. Sure enough, laying down (in any position) was bad for me, the best position for me was to sleep sitting up, which I’ve done ever since.

    The curious thing was that laying on one side produced different symptoms to laying on the other side, weird eh ?! Of the 2 sides, sleeping on my left side was the absolute worst.

    I think many of us suffer from cranio-cervical instability, even those who haven’t had accidents, especially those who have particularly hypermobile joints. The trouble with this is, that on a night, when our muscles relax (and our shoddy ligaments take over!) we suffer the consequences of craniocervical instability (i.e. if you lay on your back, you wake up with your chin on your chest, your brainstem will have been stretched overnight and possibly compressed against your odontoid, causing the autonomic system to go even more haywire and possibly put you into neurogenic shock (which often manifests as paralysis). Answer? – wear a Philadelphia Collar at night!! (but don’t forget to change the collar linings daily, or it will irritate).
    Regards
    Barbara
    (UK)
    —————————————————————————————————————-
    Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

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