- This topic has 9 replies, 5 voices, and was last updated 8 years, 9 months ago by
.
-
Posts
-
So I had an appointment with the eye doc for some issues I have been having. I asked her if she could do high resolution photos for Dr. D to look at. I had Dr. D’s poster from her talk saved on my iPad so she could read about what the study was about and why I was making that request. Here are my eyes. She said they looked pretty good, aka normal. Will be interesting to see what Dr. D says.
So I had an appointment with the eye doc for some issues I have been having. I asked her if she could do high resolution photos for Dr. D to look at. I had Dr. D’s poster from her talk saved on my iPad so she could read about what the study was about and why I was making that request. Here are my eyes. She said they looked pretty good, aka normal. Will be interesting to see what Dr. D says.
Hi Palomino, This is why eye doctors have missed this in the past (me included!). This is the “typical” magnification for a fundus photo, so you can’t see it. Some of the vessels must be magnified MUCH more than what we would do for a typical eye exam. THEN you can see the problem with the vessels. I’m using a special camera for the study that allows me to magnify the heck out of the vessels, use special filters if needed, and THEN it can be seen. Just like the examples on this site from the talks I gave. You’ll see some of the veins look like sausages on a string, hinting at poor venous drainage. I saw some other things, too that will be quite telling. I’m pulling it together for publishing it in a peer-reviewed journal now. Lots of work to do!
Thank you for sharing this!
🙂 DianaDo you know if that ocular fundus study still recruiting?
Hi MattiesMom, I’ve about wrapped it up, but if you are not too far from Texas and could squeeze in the trip, I’ll get you in!
🙂 DianaRight eye.
Hi Palomino, This may be nothing, but it is hard to tell unless it can be viewed in stereo. Do you see the vessels coming out of your optic nerve (the white ball)? Do you see how it looks like they are going over a “hump”? (kind of up hill, then down again?) If they are, that suggests some mild pressure (higher intracranial pressure). Doctors often ignore this if it’s not affecting the vision (we call it “pseudo-tumor cerebri”). But if you have other symptoms of high intracranial pressure, we treat it with… drum roll please… Diamox. I’m on a mission for doctors to NOT ignore these more subtle signs. But again, the doc needs to look at this in stereo (3-D) to know for sure… I hope that helps! 🙂 Diana
So I had an appointment with the eye doc for some issues I have been having. I asked her if she could do high resolution photos for Dr. D to look at. I had Dr. D’s poster from her talk saved on my iPad so she could read about what the study was about and why I was making that request. Here are my eyes. She said they looked pretty good, aka normal. Will be interesting to see what Dr. D says.
Hi Palomino, This is why eye doctors have missed this in the past (me included!). This is the “typical” magnification for a fundus photo, so you can’t see it. Some of the vessels must be magnified MUCH more than what we would do for a typical eye exam. THEN you can see the problem with the vessels. I’m using a special camera for the study that allows me to magnify the heck out of the vessels, use special filters if needed, and THEN it can be seen. Just like the examples on this site from the talks I gave. You’ll see some of the veins look like sausages on a string, hinting at poor venous drainage. I saw some other things, too that will be quite telling. I’m pulling it together for publishing it in a peer-reviewed journal now. Lots of work to do!
Thank you for sharing this!
🙂 DianaDr. Diana, is there a particular type of imaging machine or method that we could ask for in our area that would show the level of detail required? Also, how would you go about getting the Rx for this? Or even go about getting it read? We just saw an optometrist who refused to do any sort of magnified imaging unless she saw something irregular in her examination.
So I had an appointment with the eye doc for some issues I have been having. I asked her if she could do high resolution photos for Dr. D to look at. I had Dr. D’s poster from her talk saved on my iPad so she could read about what the study was about and why I was making that request. Here are my eyes. She said they looked pretty good, aka normal. Will be interesting to see what Dr. D says.
Hi Palomino, This is why eye doctors have missed this in the past (me included!). This is the “typical” magnification for a fundus photo, so you can’t see it. Some of the vessels must be magnified MUCH more than what we would do for a typical eye exam. THEN you can see the problem with the vessels. I’m using a special camera for the study that allows me to magnify the heck out of the vessels, use special filters if needed, and THEN it can be seen. Just like the examples on this site from the talks I gave. You’ll see some of the veins look like sausages on a string, hinting at poor venous drainage. I saw some other things, too that will be quite telling. I’m pulling it together for publishing it in a peer-reviewed journal now. Lots of work to do!
Thank you for sharing this!
🙂 DianaDr. Diana, is there a particular type of imaging machine or method that we could ask for in our area that would show the level of detail required? Also, how would you go about getting the Rx for this? Or even go about getting it read? We just saw an optometrist who refused to do any sort of magnified imaging unless she saw something irregular in her examination.
Boy, how do you argue with that? “Well, you won’t SEE the irregularity unless you magnify it.” I use an Optos camera because it has so much flexibility. You don’t need an Rx for it. There are a lot of cameras out there that just don’t have the capability, or the doctors aren’t exactly sure what they are looking for. That’s why I need to finish and then publish the article ASAP. Then you’ll have something in a peer-reviewed journal to hand them. I’ll be speaking on this (docs only at this event — so sorry) in Chicago in a couple of months, and it should be published around that time. Cool?
I don’t have my images, but my eye doctor does a retina scan (it’s a huge round thing that I look in until I see a red circle. I was told it’s a 3D image of my eye). Anyway, my doctor said the vessels are ‘squiggly’ and I have a freckle on the back of the eye. We’ve been watching the freckle for about 3-4 years now and it hasn’t changed. She thought I maybe had high blood pressure or blood sugar issues because of the vessels, but my BP is fine (and glucose levels are fine ‘usually’). I’m now wondering if it’s from external communicating hydrocelphus? My vision seems to change about every 8-10 weeks. However, I go to her and my prescription stays the same for the most part. I have an astigmatism that comes & goes. She also diagnosed me with convergence insufficiency, which responds a little with eye therapy. She suspects a central disorder…
Just bought Part 2 and will get the rest when I get home tonight.
I don’t have my images, but my eye doctor does a retina scan (it’s a huge round thing that I look in until I see a red circle. I was told it’s a 3D image of my eye). Anyway, my doctor said the vessels are ‘squiggly’ and I have a freckle on the back of the eye. We’ve been watching the freckle for about 3-4 years now and it hasn’t changed. She thought I maybe had high blood pressure or blood sugar issues because of the vessels, but my BP is fine (and glucose levels are fine ‘usually’). I’m now wondering if it’s from external communicating hydrocelphus? My vision seems to change about every 8-10 weeks. However, I go to her and my prescription stays the same for the most part. I have an astigmatism that comes & goes. She also diagnosed me with convergence insufficiency, which responds a little with eye therapy. She suspects a central disorder…
Just bought Part 2 and will get the rest when I get home tonight.
You may want to show your eye doc my poster presentation from ISNVD about the fundus study for EDS and MS. You can find it by scrolling down a bit under the handout section of the website. I hope that helps! 🙂 Diana
- You must be logged in to reply to this topic.