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Yes my my sons has always changed shapes and patterns. But it never caused any problems until recently that’s what I don’t understand. And so far all the doc’s he has seen have never seen anything like it!!!
It seems like doctors say that all the time. It makes you wonder is any of them paying attention in medical school? I think that is the cop out answer they give, because they are either too stupid or too lazy to do anything to help.
Yes I agree I have been told I have stumped them or I’m too complicated of a case basically they don’t want to be bothered. My pcp is very educated but was way to busy to see the signs. Ive been left to do all the research myself but at least now he listens and the sad thing is he does know all this medical stuff he just doesn’t put it together until I give him a diagnosis to at least rule out then he’s like your right that makes since and he will then test me for what it might or might not be. My kids doc I now have on bored but it all took a few years to get them to listen. The specialist really get to me when they don’t want to be bothered, its like why did you become a specialist if your not determind to help “complicated” patients. My doc now wants to right a med book on me because I such an “odd case”. I told him I’m not done yet when I have a few more answers then we can talk. I’ve just learned if the dr isn’t open minded its not the dr/specialist for me. I am pretty much stable at the moment but it all starts back over with my 3 children. A very long journey a stressful one that is! Thanks to Dr Dianna and all her information if it wasn’t for that idk if I would have all the answers I have!!:)
The geographical tongue so far we are stuck on that one. Just last night my son developed a blister on the inside of his bottom lip after eating some skittles. He’s gotton sores on his tongue and the sides of his tongue but never blisters on the inside of his lip. I don’t know who to go to for this, ENT no help..
Geographic tongue can be tough! Watching histamine carefully and getting control of thrush (candida) if it is present can help…
Besides a scope how else can you test for candida? My sons doc doesn’t see any connection. But I know you know your stuff Dr Dianna it only makes since to at least check for it. Thats my opinion anyway! 🙂
Besides a scope how else can you test for candida? My sons doc doesn’t see any connection. But I know you know your stuff Dr Dianna it only makes since to at least check for it. Thats my opinion anyway! 🙂
They can also do a fungal culture. Although, Candia Spc, in low numbers, are present as normal flora. If your tongue or your son’s tongue has a white film that can be scraped off it can be yeast. When Dr. Diana says to spit into a glass to see if you have the streamers form after an hour to two, that is the Candia albicans forming its pseudohyphae. In the lab we preform a germ tube test that is diagnostic for C. albicans. We grow the yeast up on a special agar plate then we put an isolated colony of the yeast into fetal bovine serum to see if it forms germ tubes within two hours. Your doctor or you kids’s pedi can order a fungal culture. All they need to do is take a scraping of your tongue with a swab and send it to a lab. You should have the results back with in a week to 10 days if yeast are present. Has your son been on antibiotics or steroids recently? Even the inhaled ones for asthma? They can cause an overgrowth of yeast.
ShondaHi, I do have the white tongue & my son & daughter at times their tongue has the white coating I have showed their doc & ent & they both say its not candia but never tested it. I was on antibiotics for 6mo before my surgery and me and my son ade both on a daily steriod my son has been on his for close to a year now. So I will ask our doc’s to actually do a fungal culture.. Do you know how they usually treat it? & is it common for it to return? Thanks so much for the info.;)
Jamie when you scrape the white stuff of is it red and irritated underneath? Sometimes it will bleed some too. Also, is all over your mouth or just the tongue. If it is thrush then the doctors can give you a special nystatin mouth wash. Stay away from OTC mouth washes because they make things worst. If fact they are bad for everyday use. If the Nystatin does not work they can give you an oral anti fungal like Fluconazole. It needs to be treated if y’all have thrush because it can spread down your throat and will become quite painful. Also, if you have it your husband will need to be treated too so, it does not keep getting passed around.
ShondaDo they take an oral steroid or an inhaled? If it is an inhaled one, was your mouth out with water after each use. That helps prevent it from coming back.
ShondaHi, we are on oral steriods cortef and fluordicort. When I spit in the cup it is worse than the photos on Dr. Dianna’s video very thick and strings to the bottom my son it only shows the stringy stuff at certain times of the day mine is at any time and the white is only on my tongue no where else in my mouth and my mouth isn’t painful at all like my son’s. The white stuff almost looks like a fur over my tongue I don’t know how to explain it when I scrape it off it is just leaves pink lines where I scrape it. I have big red bumbs on the back of my tongue that are some days bigger than other days but no open sores also under my tongue I get the same big red bumps that come and go. My Dr says its nothing but I know it is something. Also my husband spit in the cup it doesn’t do anything. I did just have a endoscopy about a month ago would they have seen it if it was in my throat or esophagus? Or can it be missed? They said all my biopsies were normal.. thanks again, greatly appreciated:)
Shonda I just scaped my tongue and yes it started to bleed in spots what does this mean? I never scraped til I got to the bottom every morning afternoon & night when I’m brushing my teeth I of course brush my tongue and a lot goes away sometimes all of it looks like its gone but it always returns. I have a powertooth brush I change the brush every other week at this time and I boil the brush before every use just bc I tthink it is some type of fungus or yeast infection. Once Dr Dianna mentioned Candida the first thing I thought is, is it living on my tooth brush also..
Yeast irritate the surface of the mouth and it will be ed and bleeds. Of course with EDS we bleed easily, I would see if your doctor would be agreeable to a culture and the Niastain mouthwash. That way as you will know for sure. Usually, thrush looks like a cottage cheese like film. It is creamy. If it looks like fur it may be something else. Like dry mouth or even certain medications. However, your doctor should be able to tell you what it is, and not say I don’t know. maybe try another doctor? The scope and Bx being negative are good. So if it thrush it has not spread, but it almost sounds like something else.
ShondaI will definitely have my doc. Do a culture. I didn’t realize how thick the white coating really was before when I sraped it I would notice it coming off so I would just brush to remove it for a few hours. When I scraped it today I continued until I got to the bottom and that’s when I seen the blood and underneath there is small bumbs all over and my tongue looked choppy like as if it has cuts on it especially on the side’s. So I looked up some photos and I did see a lot of tongues that looked like mine so I will definitely follow up with my Doc. Along with my poor digestive system that’s is another one they can’t fig. out I think that’s another place Candida likes to hide if I’m not mistaken. Well thank u for your info if its not candida then at least I know. :)!!!!!
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