August 20, 2015 at 11:47 am #887
Any ideas? I am uninsured and getting my whole spine done, one at a time. This was my first MRI of the brain done a few days ago. I also have cool sensations, sometimes with tingling in different areas of my back. My head often feels tight and when I am propped up on a pillow watching TV it can cause me to get a headache from either the pressure against my head, the angle or maybe both? If this could be serious then I will definitely be signing up for insurance during open enrollment.August 20, 2015 at 8:46 pm #5616
I can see one or two possible contributory factors. Firstly low-lying cerebellar tonsil are crowding the opening at the bottom of your skull (Foramen Magnum) which may be interfering with your cerebro-spinal fluid flow (CSF). You also have a retroflexed odontoid (an anatomical difference in the peg-like bone near the top of your neck, where it points slightly backwards instead of pointing straight up). This in itself doesn’t necessarily give rise to problems but, if you have been involved in a trauma and damaged your head or neck, or have the joint hypermobility type of Ehlers Danlos Syndrome (EDS), then this could be contributing to your problems.
Until you find out for sure I’d be avoiding any slouched, slumped, or leaning forwards positions, try and sit as upright as you can, with your head balanced above your shoulders. Use a pillow that supports the curve of your neck and don’t have any pillows or cushions pushing on the back of your head.
Barbara.August 22, 2015 at 1:55 pm #5631
Thanks Barbara for your feedback. On my MRI report it says tonsil is not more than .5cm below foramen magnum so no Chiari. Then it says empty sella, normal variant. Otherwise unremarkable. So my primary doctor basically thinks there is nothing wrong with me. I am having cervical MRI in a couple weeks. Am going to have a NS who is a specialist, review.August 22, 2015 at 7:26 pm #5633
If you look at the link below it will talk a little more about empty sella but particularly, a couple of posts down, it gives a link to The Chiari Institutes videos. Listen to what it says there because the mid sagittal MRI shot doesn’t give a true measure of the level of cerebellar tonsilar herniation. Dr B there says the diagnosis (or not) of Chiari based on this views measurement can be misleading. Check it out, it will make you more informed for when you’re discussing it with your doctorAugust 22, 2015 at 8:31 pm #5634
Sorry, The Chiari Institute videos I referred to in those posts have been removed but I’ve found a more recent Dr Paolo Bolognese (Neurosurgeon & Chiari Expert) video that may be useful to youAugust 23, 2015 at 9:08 pm #5638
Thanks again Barbara. Great video 🙂
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