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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Head MRI: Anything Peculiar?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Head MRI: Anything Peculiar?

  • This topic has 1 reply, 1 voice, and was last updated 6 years, 8 months ago by Barbara.
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  • June 18, 2016 at 1:38 am #1014
    Frost
    Participant

    Dear All,

    I was diagnosed with hypermobility-classical overlap EDS, and am suffering from congestion and headaches (as well as tinnitus, and open Eustachian tubes) that are likely sinus-related (nose/the soft tissue/structural problems).

    I have attached a single MRI photo of my head.

    I am not very experienced with head MRI scans, but from this single photo, to me, my head looks structurally abnormal in a few ways. E.g. the pronounced “vertex” on top of my skull, the pronounced nose, and it’s almost like the front of my brain is pressing down on my face more than usual (?).

    It would be great if anyone, who is perhaps a bit experienced with MRI scans, could share any observation of anything “peculiar” in this photo (possibly EDS-related), so that I perhaps go and see an appropriate specialist. (If necessary, I can upload more photos, at different cross-sections.)

    Many thanks!

    Attached files

    July 14, 2016 at 8:26 pm #5990
    Barbara
    Participant

    Sorry, just don’t have time to annotate it but looking at the back of your head, the distance between C0 (head) and C1 (neck) and also C2 for that matter looks too far apart. In effect, it’s stretching up the back of your head and tilting your head forwards and possibly affecting your brainstem. The vertex you mention is what would normally be the top back of your head, if it was in it’s normal position.

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