PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Headache after Diamox

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Headache after Diamox

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • February 25, 2018 at 10:35 pm #1153
    Yvette
    Participant

    I haven’t been on diamox for long but I take 75mg at noon. This makes my headache go away but after about 4 hours I have a worse headache than before. I’m wondering if this is the high pressure coming back or is this low pressure from the diamox? I’m not sure if I should take a second dose which my doctor said is ok to take another dose I just don’t want to go into super low pressure. Has this happened to anyone else?

    March 1, 2018 at 5:11 pm #6256
    Dr. Diana
    Keymaster

    Hi Yevette, Headaches come in all shapes and sizes and for many reasons — this secondary headache may not be pressure related, in fact. It could be a side effect of Diamox, or even due to your brain shifting position from the change in pressure. You are on a small dose, and I agree with your doctor that it would be a good idea to try another dose about 4 hours after taking your first dose.
    If the headache goes away, you know what you’re dealing with! I hate to keep preaching this, but please make sure that someone is watching your electrolytes, OK? Gentle hugs…

    March 1, 2018 at 11:45 pm #6257
    Yvette
    Participant

    I take NUUN tablets for my electrolytes. And I’m waiting for a call back from my doctor to order the CO2 serum test and check my potassium levels. Is this what you meant by watch my electrolytes? Am I missing anything? Also I drink fresh lemon juice in water about an hour before taking the diamox.
    Thank you

    March 3, 2018 at 6:55 pm #6258
    Dr. Diana
    Keymaster

    Yes, that’s right! An electrolyte panel should include both CO2 and potassium (among others).
    xxoo

    March 4, 2018 at 1:24 pm #6259
    Yvette
    Participant

    Hello Dr. Diana I am a little confused about the diamox and CO2 level being at 22 and how this relates to alkalinity? In your video you said if you dropped below 22 CSF poured out your nose (which I have sometimes too). So I’m not understanding the relation between CO2 and alkalinity? Does this mean if I stay more alkaline I leak less? Or did I misunderstand the whole video which is likely because my brain doesn’t work sometimes through all of this.
    Thank you for all your replies I appreciate it.

    March 5, 2018 at 12:41 pm #6260
    Dr. Diana
    Keymaster

    I understand your confusion! What I’m trying to say is that if my CO2 went below 22 or so,
    my intracranial pressure symptoms came back, as well as my CSF leak! It just meant I wasn’t fully controlling my intracranial pressure unless I kept my CO2 (a measure of alkalinity/acidity) in line.
    Hope this helps! 🙂

  • Author
    Posts
Viewing 6 posts - 1 through 6 (of 6 total)
  • You must be logged in to reply to this topic.