January 15, 2014 at 9:34 am #642EDS99Participant
Hello all, excuse me for not researching this to see if an answer found be found. I’m just very short on time.
My D. Has a mild droop to her left eyelid. When the doctor inquired, she said she had a mild headache and usually never has a headache. Lyme’s has been ruled out. The MD did an ultrasound and became concerned. There was no plaque found. Findings were:
1. 0 –-19% stenosis noted in the right internal carotid artery
2. Mildly elevated velocities in the left ICA , Consistent with mild stenosis or 20-49% stenosis.
3. No significant stenosis in the external carotid arteries bilaterally.
4. Antegrade flow in the vertebral arteries, bilaterally
5. Normal flow in both subclavian arteries.
I never was able to purchase Dr. Diana’s book because, for some reason, It was not available on amazon after a few months of being sold. I am wondering if this ultrasound ‘jives’ with her theory.
She will see the neurologist tomorrow. The one she saw so far is a vascular neurologist (the ultrasound was done within his department…most in depth U/S I’ve ever seen). The one she sees tomorrow is a neurosurgeon who has professional ties to Henderson, Francomano, etc. So he is supposed to be EDS friendly.
Please help me come up to speed on the possible theories and issues surrounding this. In the meantime, I am trying to think of ways to prepare my college aged daughter to absorb the results if this ultrasound. She prefers to put her head in the sand and pretend EDS doesn’t exist. So she will be very concerned when she knows.January 16, 2014 at 11:40 pm #4753Dr. DianaKeymaster
Well, no worries about this as related to The Driscoll Theory (which discusses our VEINS, not arteries). It is my understanding that “usually”, this much stenosis in our carotid arteries is not usually operable. Is that what you all have heard? When I looked into our eyes, I could SEE our abnormal plaque build up, though, and I know that many of us tend to develop clots. Blood thinners are often used to help us, and they often DO help. Our doctors must be careful, though, as we are also prone to bleeding and aneurysms. BAD COMBO! My mom had her third ischemic stroke (clots), then a brain bleed when they started her on blood thinners. I’m facing the decision with my own health right now — Would I rather clot or bleed? Hmm… tough decision! Please let us know what the good doctor says, OK? The good thing about stenosis in arteries is that this is KNOWN science with TESTED treatments, and stents WORK, when needed (as opposed to veins). Veins are a totally different story, my friends! 😉January 17, 2014 at 12:41 am #4755EDS99Participant
Tired right now. By neurosurgeon says he does not see the stenosis but rather he sees a hypo plastic artery…which may be congenital . I need to confirm that is exactly what he said by what he summarizes in his report. He also wanted to consult with the radiologist who hasn’t the time to produce a report. So it is definitely into the neuro-opth because this neuro-surgeon thinks eye droop is a local issue. So that is good news but as it was with the vascular neuro, I won’t have the final interpretation for a few days. I will bring imaging back to the vascular neuro for review and possibly make an appt with the neuro-opth.
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