- This topic has 3 replies, 3 voices, and was last updated 10 years, 5 months ago by .
- You must be logged in to reply to this topic.
Wondering if any genetic link has been found with early onset hereditary macular degeneration and EDS III.
I have 6 generations of EDS. 2 siblings in one generation have Early onset (in their 20’s) hereditary macular degeneration.
The “fundus” study got me thinking about this …an interesting puzzle.
I’d be interested in this too, as all 3 of my fathers siblings have gone blind to some degree, so there’s an eye weakness that seems to run on his side of the family. I know for sure that one of them had Macular Degeneration.
Head & Neck Injury 2002, POTS, EDS, CCI (with PG & CS), WAD, Empty Sella, Peripheral Vestibular Dysfunction, Mild Radiculopathy & small fibre neuropathy (right leg & foot resp.)
Not sure. Not always lots of research about EDS, but I wouldn’t be surprised. Our eyes are connective tissue mostly.
That is very interesting stuff about question with Hereditary Macular Degeneration. I have always found it weird how I have inheredited Macular Degeneration in one of my eyes which they found when I was 20 years old.
I have had to wear hard contact lenses since I was 14 or 15 years old. My eye doctor has tried to get me into soft contact lenses at 3 different times in my life and for some reason every attempt has failed. I’m the only person in my family of 4 who has to wear hard contacts, everyone else can wear soft ones for some reason.
If you find out any connection between Macular Degeneration and EDS please let me know.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross