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Hi! This is my first post. I am looking to talk to others who have mast cell disorders along with POTS and/or EDS. I am sensitive to almost EVERYTHING! I have sulfa allergies too and so I’m guessing that I can’t take Miodox? I also react to almost all supplements and all but approximately 10 foods. I do NOT have a firm diagnosis of mastocytosis – my tryptase levels are normal and my histamine levels are actually low. I take 1/2 Zyrtec daily (it’s ALL the antihistamine I can handle without it causing severe depression). I experience itching a LOT. In fact, I had daily head to toe itching for 1 1/2 yrs. without relief. Finally, that has tapered off but if I eat too many salicylates or too much exposure to other triggers (perfurmes, laundry detergent on other people’s clothes, etc…) then I begin reacting again. Plus, I can’t eat anything outside of my 10 (maybe 15 now) “Safe” foods. I follow a low histamine diet but honestly it hasn’t made much of a difference overall.
Please share if you have had success in overcoming the mast cell issues. What does a person do when their sensitivities are so bad you can’t take what you need??? Thank you!
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