- This topic has 4 replies, 4 voices, and was last updated 5 years, 11 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › High altitude and diamox
Recently I moved from 400 feet above sea level to over 4100 feet above sea level. I wasn’t sure how to adjust my diamox and have actually found my high intracranial pressure much better. Has anyone else found relief at high altitudes?
YES! I often hear from patients that when they go on vacation at a high altitude they feel better (as do I). It also explains why so many of us CRASH and burn when the barometric pressure drops!!
🙂
Dr. Diana,
Do you still deal with intracranial pressure? I thought I read that you were on it for 2 years and then were able to come off? Or do some people have to be on it the rest of their lives?
Thanks for any input.
Terriann
I do better at around 2000 ft elevation. Not so good at sea level and I can’t go above 5000 ft without needing a trip to the ER. At higher than 6000 ft I can hear my skull crackling and I go pins and needles in all of my extremeties. It’s awful.
Barometric pressure tonight is 991. Ouch. Even my eyeballs hurt. Is this when I should take additional Diamox to compensate?
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross