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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

How do you rule out Neuropathic POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › How do you rule out Neuropathic POTS?

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  • January 24, 2015 at 4:28 am #781
    Brenda
    Participant

    Hello

    I saw a Neurologist this week and he suspects that I have EDS and is going to send me an appointment for autonomic disfunction testing. How do they know whether it is neuropathic or non-neuropathic POTS?

    Your advice would be appreciated.

    Thank you

    January 24, 2015 at 7:01 pm #5262
    Dr. Diana
    Keymaster

    Brenda, Non-neuropathic POTS is a diagnosis of exclusion, meaning they will rule out neuropathic POTS. Does that make sense? A great panel of blood work to do this is in the book, page 89. See it? 😉

    January 25, 2015 at 6:29 am #5264
    Brenda
    Participant

    Thanks Dr Diana

    I must have missed this and will look it up. An EDS diagnosis seems to be one small step at a time! I asked about a Diamox trial but the Neurologist said its use for EDS/Chiari is still in the research stage.

    All the very best

    Brenda

    January 25, 2015 at 1:45 pm #5265
    Dr. Diana
    Keymaster

    Hi Brenda, I am going to respectfully disagree with your neurologist. The use of Diamox for high intracranial pressure is NOT new science. We certainly do NOT need to do “research” to test a medication for a particular group of patients (such as EDS). What The Driscoll Theory revealed was the propensity of EDS patients to develop high ICP, usually responsive to Diamox. If high pressure is suspected, Diamox is the number one choice for treatment (FDA approved). This is not a new medication, we know the risks and benefits, and physicians do not need to fear it! Now brain shunts — THOSE are scary. Diamox? Not so much… 🙂

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