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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › How long does it usually take for Diamox to work?
Hi Everyone
After suffering severe lower head, neck and shoulder pain, breathlessness and other symptoms for nearly three years, I have at last been able to get a prescription for Diamox. I’ve taken three 125 mg doses so far but the pain isn’t going. Should I increase the dose I take before I go to bed? Insomnia has been a problem for me since the accident which triggered my problems and it is only when I take Zantac and Zyrtec that I usually sleep. Should I continue taking these as well?
I had my CO2 levels checked a couple of months ago and they were OK but not sure how often I need to do this or whether it is OK to take Baking Soda without checking my blood again to see if this improves things.
Your advice would be welcome.
Worried but optimistic!
Hi Bea, The first thing is always to check the CO2 — it can change quickly. Our patients have a standing order and for a while, check electrolytes at least every 2 weeks (or if they feel like Diamox is not working as well as it used to). Only then, should you try to increase the dose to see if it is not as strong as you need. Please remember the evening dose is the most important, and needing 500mg at night is not unusual at all. Everything I know about making Diamox work (and keeping it working) is in the chapter on Diamox pearls in The Driscoll Theory. More advice is in some of the videos like this one: (cut and paste into your browser): http://prettyill.com/videos/watch/lets_talk_about_diamox_updated Good luck, my friend!
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