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My genetic consult referred to my postural tachycardia, but that was about the extent of it. When I asked about POTS the geneticist said I didn’t have it because my blood pressure normalized in proper time. When I stand, my heart rate shots up and my blood pressure drops, but since it normalizes in a timely manner, no POTS.
I asked about the dizziness, which he said was a normal part of being tall.
I have known for quite some time that I have a problem with norepinephrine because of drugs I’ve been on and had really truly awful experiences with. Ie. wellbrutin. I have always known it is something I need less of, not more.
I didn’t realize there was a test for norepinephrine levels? Can anyone tell me about what the test is? Do you have to do it when you feel wired for results to show up?
Also, before I learned about EDS I was convinced I had severe adrenal fatigue (I am like a character from the Walking Dead in the morning). Basically can’t function until 12pm. My cortisol is high/ normal, although it raises to out-of-normal high in the evening. Does anyone have a pretty much constant state of what looks and feels like what is described as adrenal fatigue?My genetic consult referred to my postural tachycardia, but that was about the extent of it. When I asked about POTS the geneticist said I didn’t have it because my blood pressure normalized in proper time. When I stand, my heart rate shots up and my blood pressure drops, but since it normalizes in a timely manner, no POTS.
I asked about the dizziness, which he said was a normal part of being tall.
I have known for quite some time that I have a problem with norepinephrine because of drugs I’ve been on and had really truly awful experiences with. Ie. wellbrutin. I have always known it is something I need less of, not more.
I didn’t realize there was a test for norepinephrine levels? Can anyone tell me about what the test is? Do you have to do it when you feel wired for results to show up?
Also, before I learned about EDS I was convinced I had severe adrenal fatigue (I am like a character from the Walking Dead in the morning). Basically can’t function until 12pm. My cortisol is high/ normal, although it raises to out-of-normal high in the evening. Does anyone have a pretty much constant state of what looks and feels like what is described as adrenal fatigue?Hi,
I would see a cardiologist for the diagnosis of POTS. Being dizzy is not a normal part of being tall. It is not normal at all. I would say at the very least you have orthostatic intolerance. Did the geneticist diagnose you with EDS? Cortisol levels vary hroughout the day. they should start out high early in the morning and decrease before it’s bedtime, but if you don’t have any regular schedule your cortisol levels will be different. High cortisol levels would indicate Cushing’s syndrome. It is actually cause by your adrenal glands producing too much cortisol. I personally feel that adrenal fatigue is made up to manipulate people into buying some produt designed to help fatigue. EDSers have a lot of hormonal issues that seem to vary from one person to another. We also have problems with adrenaline and how it is processed. This is most comon in type III.
ShondaMy genetic consult referred to my postural tachycardia, but that was about the extent of it. When I asked about POTS the geneticist said I didn’t have it because my blood pressure normalized in proper time. When I stand, my heart rate shots up and my blood pressure drops, but since it normalizes in a timely manner, no POTS.
I asked about the dizziness, which he said was a normal part of being tall.
I have known for quite some time that I have a problem with norepinephrine because of drugs I’ve been on and had really truly awful experiences with. Ie. wellbrutin. I have always known it is something I need less of, not more.
I didn’t realize there was a test for norepinephrine levels? Can anyone tell me about what the test is? Do you have to do it when you feel wired for results to show up?
Also, before I learned about EDS I was convinced I had severe adrenal fatigue (I am like a character from the Walking Dead in the morning). Basically can’t function until 12pm. My cortisol is high/ normal, although it raises to out-of-normal high in the evening. Does anyone have a pretty much constant state of what looks and feels like what is described as adrenal fatigue?Hi,
I would see a cardiologist for the diagnosis of POTS. Being dizzy is not a normal part of being tall. It is not normal at all. I would say at the very least you have orthostatic intolerance. Did the geneticist diagnose you with EDS? Cortisol levels vary hroughout the day. they should start out high early in the morning and decrease before it’s bedtime, but if you don’t have any regular schedule your cortisol levels will be different. High cortisol levels would indicate Cushing’s syndrome. It is actually cause by your adrenal glands producing too much cortisol. I personally feel that adrenal fatigue is made up to manipulate people into buying some produt designed to help fatigue. EDSers have a lot of hormonal issues that seem to vary from one person to another. We also have problems with adrenaline and how it is processed. This is most comon in type III.
ShondaAlso, the test for the norepinephrine levels is similar to the test for the cortisol levels. You avoid exercise, certain foods, and certain medications before the test. It will be a 24 hour urine or blood sample. The doctor should give you a complete list.
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