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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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I have 2 CD discs of brain MRAs from 2006 and 2014.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › I have 2 CD discs of brain MRAs from 2006 and 2014.

  • This topic has 4 replies, 2 voices, and was last updated 7 years, 8 months ago by Barbara.
Viewing 5 posts - 1 through 5 (of 5 total)
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  • June 29, 2015 at 3:35 pm #862
    Annalynnette
    Participant

    I wanted to look at them to see if there were changes. I know that I have had a huge change in how I feel. The pressure that I get inside my head and neck have been more than I can handle. Activity makes it all so much worse. If you have intracranial pressure is it made worse with activity?

    June 30, 2015 at 3:24 pm #5562
    Annalynnette
    Participant

    I am also trying to get all the info that I can to take to a doc that can help diagnose me. I’ve been looking up some online. We have none here. I continue to get worse.

    June 30, 2015 at 9:07 pm #5566
    Barbara
    Participant

    That’s a good idea, I learnt a lot by looking at my ‘series’ of MRI’s spanning over several years. Have you managed to look at your disks, did you see any changes ? Just in case you’re having trouble, or nervous of how to access your images, the viewing software is usually supplied on the disk and often starts automatically, after you insert the disk (though I’ve had one or two that don’t!). Let me know how you get on.

    July 1, 2015 at 3:23 am #5567
    Annalynnette
    Participant

    Yes I have been looking at them. I’ve found other sites to compare. My uncle, now retired use to be a chief tech in brain scans. I’m going to see if he will look at them with me.

    July 3, 2015 at 7:35 pm #5569
    Barbara
    Participant

    Yes, I went on many, many radiological websites, comparing MRI’s with anomalies against my own and found it all invaluable. It’s good that your uncle might help, he’s the ‘go to’ guy.

    Movement and activity certainly worsens my intracranial pressure, any task that involves lifting, straining, bending, or particularly in my case (craniocervical instability) some head movements.

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