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I literally have figured this out 4 days ago after suffering for 10 years! I think I’m still kind of in shock. I was at the end of my rope. Every single person except for the one I live with is gone. It has completely obliterated my life. I’m in massive debt, without a friend in the world, not working, no income, staying with the one person who is still in my life. I’m so full of emotion.
So many of us know your struggle. You have my prayers and compassion. Now that you know what’s wrong there’s help to be had. HyperPOTS is debilitating. Please read Dr. Diana’s book. She gives solid advice on how to move forward. And her videos are very educational too. I hope you can get the help you need to move forward. Take one day (sometimes hour) at a time. Know there’s others out there that understand. God Bless.
Thank you for the kind words 🙂 I was a very bright and sunny person before all this happened. Now I have hope that I might actually return to the person I truly am. I’m so glad I found this community and Diana’s info. I need to look into getting her book.
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross